I have no idea what to say or do....

Hi,

I am Karen, I'm 44 yrs old, married and we have one son, I have two step children too, both adults and grown up, or so they say :)

 I have just been diagnoised with breast cancer, I have had my biopsy and am awaiting grading and type.  I have a follow up appointment this coming Tuesday, 20th Oct.

I am in the process of what do I need to do to get from A to B.  I need to know what I am dealing with, I need to know the in's and out's.

To date, only my husband knows, I can't bear the the thought of telling my family, I know my parents will just crumble, my sister and brother will be in bits, my nephew & niece will be distraught, my step children, the in laws and extended family......and MOST of all my son, my beloved son....I have no idea how to tell him.......I am ok with cancer, I know that I am strong enough to deal with all of it.........but telling them will buckle me, I just don't know how I can deal with this, I don't want them to worry, I am doing this, I am breaking this down and smashing this cancer........

I have no idea what all of the types of breast cancer mean, I feel as if I have been swallowed up and I no longer understand what is being said..............I am sure I will get to understand, but you know what, given a choice I know we would all not want one second of this sh**

But we are where we are...........

If anyone has any advice, please let me know

Thank you xx

 

 

  • Hi Sue

    Sorry for late reply, roller coaster ride right now.

    Tuesday confirmed lobular cancer, due to this rare cancer I was sent for an MRI to confirm size, location and spread.

    MRI shows one confirmed area of cancer 2.8cm, which we knew about, and an additional suspicous mass in another area in same breast showing as 2.1cm, with a seperation of 1.7mm so we are looking at a 6cm cancer in my right breast.

    No spread to left breast and no indication of lymoh node spread.

    So, that means we are looking at a 8cm for a clear margin, luckily I am of ample breast and Consultant, is still happy to proceed on a lumpectomy and dual breast reduction, but this now means going to a smaller cup due to cancer size, we had looked at going from FF to D on original diagnosis, but now we are looking at FF to B.  I just don't care anymore, I just want this out of me...

    If on surgery, it is bigger mass than show, I will have a mastectomy with implant.........

    I was told surgery plus rads now things have changed.  I need to have a  biposy on new lump......Surgery is booked for 6th Nov, so I am now looking at Surgery, rads, chemo and 5yr hormone treatment.

    So, all in all a pretty *** day.......

    I just want it over with xx

  • Hi Karen, so sorry to hear a second lump has shown up, that must have been a hell of a shock for you. But there is some good news to hang onto, in that it doesn't appear to involve the lymph nodes and your other breast is clear. I know that's little comfort at the moment but it is good news believe me. I also had lobular on one side (tubular on the other) and have made it through. It isn't easy and all the uncertainly and waiting around does your head in for sure but you can, and will, get there I promise you. Look after yourself over the next couple of weeks and I am here anytime if you want to shout, scream, rant or ask any questions. Take care and lots of hugs  Sue xx

  • Hi Karen

    Just read your latest news re the second lump sorry to read this. It must have been a lot to take in.

    I'm sure you will be glad when Surgery day is here and gone. As Sue has told you not to hesitate

    To air you views we are here to help if we can. Take care. Jean

     

  • Hi Karen, I am so sorry I missed wishing you all the best before your surgery. I hope all went to plan and that you are now starting to recover a little? When you are up to it do let us know how are you.... Take care  Sue xx

  • Hi Sue

    Surgery went to plan and I am now home for 6wks post op recovery.  I am pleased with the results and am happy that I am healing well, my consultant is also very pleased with me recovery.

    I have just had a call from hospital to say I have clear margins.........So, some very good news!

    Another appointment to go over full histology tomorrow afternoon so will have more news then.

    Thank you for remembering me and sorry for the delay in repsonding.

    Feeling postive and one day at a time.......

    K xx

  • Hi Karen, so glad to hear you are recovering so well and that the margins were clear, that's fantastic news! Do let me know how it goes tomorrow won't you? As you say, one step at a time but it's so good to get rid of it isn't it?!

    Am also home at the moment as I had a second shoulder procedure on Monday which, thankfully, seems to have gone well too so we're both getting there eh?!

    Hopefully hear from you tomorrow then  Take care  Sue xx