How do I cope?

I was diagnosed early last year; had a mastectomy, chemo and radiotherapy.  A mammogram earlier this year showed clear.  I was due to have reconstructive surgery round about now so my surgeon sent me for a CT scan.  This has showed up something on my liver.  I went for an ultrasound (my oncologist said it looked like an haemangioma (tangle of blood vessels) so we should get it scanned so we had it on record.  But at the ultrasound the radiographer said he wasn't happy to call it an haemangioma cos it didn't look quite like they usually do and he is sending me for an MRI scan in two days time.  So now I realise they actually think it's secondaries and want to confirm that.  I am so frightened.  I am 53.  I have 2 children in college and my youngest is still in school, only 14.  I was meant to be there for them as they went through life. I couldn't sleep all last night and haven't eaten since yesterday lunch time.  How will I go like this?  How will my husband cope? How do I stop all this from ruining my children's lives?  The survival rates for Stage 4 don't look good - I was supposed to grow old with husband:  I won't even get a retirement.  Can anybody suggest how I can get a grip of my emotions and cope with all the things I need to do?

 

  • I have lymphodoema too - in the left arm and as you know that reduces the options for canulas.  When I was in hospital with pneumonia last year, my canula dried up when they took me down to x-ray and forgot about me.  The antibiotic they were giving me only came in intravenous form and it took three different people 7 attempts to canulate me.  They tried in my foot but gave up.  It was half past 11 at night by the time they succeeded - I was exhausted!

    Spoke to my daughter this evening - she is away at college.  I told her I'd been in for Herceptin but didn't mention the scan.  It's her first term and I don't want to upset her. But it's going to be hard keeping secrets.

    I hope you have a good night too.  If I wake in the night, or can't sleep, I will think of you chanting. x

  • I have had pneumonia a couple of times. It looks like we have travelled similar paths.My son is going to University part time here in Brighton. I got two appointments today to go for lung function tests not sure why. I assume its a baseline but no one had mentioned me needing them. I will call on Monday and see if I can find out who referred me and why!!! My friend has come to see me for the weekend we went out and shopped all day. Just woke up from a nap so probably won't sleep tonight but thats OK its been a lovely day.She goes back tomorrow. Hope your day has been OK. XXX Nikki

  • Did the weekly shop this morning as usual and had a mooch around the shops with my husband this afternoon.  Fancied a new coat but didn't get anything in the end.  Today I feel like I've been behaving as if nothing is happening at all.  Just forgetting all about it / pretending its not really happening (temporarily) is a way of doing normal stuff like any other day (although I know another moment will come along when I'll be completely cut up again).  

    Waiting up now for my daughter who is paying a flying visit this evening (actually she just needs somewhere to stay before travelling back to college in the morning)!  Will be seeing lots of cousins tomorrow so busy weekend all round.  Got a decent amount of sleep last night and have managed to eat quite well but it could all come crashing down around me any minute!  Glad to hear you've had a nice day and kept your mind off things.  

    Take care x

     

  • Hi Loulou. I hope you are OK? Nikki

  • I'm still waiting to hear about the results of my MRI scan.  It was a week on Friday.  My next appt with my oncologist wasn't due till the first week in December so I'm expecting  call or a letter any day now to bring it forward so i can get the news.  

    I've managed to put it out of my mind for a while and I'm actually feeling better than I have for a long time.  Fitter, more energy.  I just know that at some point very soon my bubble is going to be burst and it'll be a hard, hard fall..

     

  • Hi there, Please try to keep positive. Once you know the results you will find the strength to deal with it. The waiting is the hardest part.

    I am finally having surgery on 20th November the lump is too deep in my lung for biopsy so I am having the middle lobe removed and then depending upon what the lump is and any lymph node involvment they will decide on further treatment.

    Now I know whats happening to a degree I am sleeping a little better and like you just trying to put it all from my mind.

    I am thinking about you and sending you positive thoughts and prayers. It is very very hard.

    Lots of love XXXX Nikki

  • Thanks Nikki

    still no news and getting very stressed so here I am at half past 2 in the morning - not sleeping and beginning to realise what it really means when people say they are 'worried sick'.

    I have looked up the number for my oncologist's secretary.  The idea of ringing up absolutley petrifies me buti think its got to be done.

    I don't know how you are able to be so brave.  God bless - I hope you op goes okay. xx