Hello Carrie,

Nice to hear from you again, I can completely empathize with you over wanting to get started with treatment, I have felt the same way both times. Hopefully it will not be long now. Do you know which type of chemo you are having? Is it the usual RCHOP or something else? There are so many more choices now.

I am well at the moment thank you, just eight weekly clinic appointments for the time being, thank goodness!

Have a nice bank holliday,

Speak to you soon, Christine x

Hi my name is jean and I'm new to the forum I'm 56 and just been diagnosed with ovarian cancer.i have had fluid round my lungs for quite a few months.never in a million years did I think I would get cancer.iv been in hospital for 2and a half weeks.i came out on Friday.today isn't a good day I have felt very tearfull but think il get a few like that.it will be nice to speak to people who are affected in the same way.i no I have to have a historecomy some time soon.when you are told cancer I felt it was like being hit by a bus.

Hi Christine,

I'm glad to hear that you are well at the moment.

Yes I will be having RCHOP and I will be calling the hospital tomorrow to chase it up as I was under the impression that I would be starting treatment by now.

I'm now trying to get myself organised with all of the practical things.... And I have a 3000word essay to write by Thursday as I'm studying for a degree... Not good timing!!

It's really good to hear from people who have been through the chemo and come out the other end in one piece! What kind of side affects did you have? 

Carrie x

Hi M,

I like you are trying to stay positive, it's a bit like plunging into the unknown though isn't it?!

Good luck for Thursday, do keep in touch and let me know how it goes.

Carrie x

Hi Jean,

Welcome to the forum.

I can empathise with how you are feeling right now. I'm sorry to hear you are having a bad day, I've had a few of those too, but it is only natural when you are coming to terms with such news.

we both seem to be at a similar stage in our journeys, so please do stay in touch.... A bit of support from each other may help.

Do you have support at home?

Carrie x

Thank you Carrie.

It's such an awful time but I will do absolutely anything to get through this. I have two boys 22 and 24 who are my inspiration. I also have the most amazing husband and family who are giving me brilliant support. One of my brothers had surgery two weeks after me to have stomach cancer removed so we feel the family have suffered a double whammy, but we will get there. 

You take care of yourself and keep us posted on how it's all going 

Moira x

Hi Carrie,

RCHOP seems to be the gold standard for first line treatment of high grade NHL. I had RCVP the first time and RCHOP with my relapse. Have they given you any information about the treatment? If not the Macmillan website has very good info about each type of treatment that will help you. It gives info about side effects and how the drugs are given. My hospital gave me a print out of this each time and it was useful. Please be aware that nobody gets all the side effects and some get very few.

The worst for me on RCHOP was the sickness and the hair loss, also my hands and feet went numb and I felt very tired. The sickness was sorted with extra medication, but the hair loss is something we have to come to terms with. With this regime it is quick and I had lost all mine in about five to six weeks, just before Christmas. My wig arrived just in time for our car club Christmas lunch, so it was fitted on the Saturday afternoon and I wore it the following day, very relieved!

I hope you get your treatment started soon, maybe when you have finished your essay would be good. My consultant told me the start date the first time I saw him, which was good. In fact saw him on the Friday and started the following Wednesday, I hardly had time to dwell on it!

Speak to you soon,

Christine x

Hi Carrie,

I have aggressive stage 4 nhl I have completed chemo and im looking at radiotheraphy now.

I am happy to discuss with you-get in touch.

Rachael xx