Palliative care at home

I am new here, nursed my darling husband  of 30 yrs at home palliative care for past 12 weeks till he passed 07/10.  Diagnosed start July with sciatica ended up being bone cancer of back L2 and sacrum, primary lung , adrenal gland with brain mets. Privileged to look after him though it was tough, was administering sub cuts for last 2 weeks.  Have some handy hints to assist with how to turn as he was 6 foot 3 and I am less than 5foot tall.  Nothing would stop us from providing best care possible , thankfully supported by nurses once a day a great palliative care team

  • Hi Kathy, just wanted to wish you a happy St Andrew's day! Not sure if that's the done thing, but wondered if you do any special to celebrate? I know Hogmanay and Burns' night are the usual high days celebrated North of the border! Hope you've been having a good time with your son. Take care, hugs, Jo xx
  • Morning (from here) Kathy

    Hope you had a good visit with the 'outlaws' no doubt made a lot sweeter by the 2yr old's birthday party.  Have no doubt there were many mixed emotions but the little one's smilescuddles saw you through. Sending hugs for the start of the week and how strange are you feeling with work having finished for now?

    Take time to give yourself some tlc and hope the chat with mother in law helped all concerned. Jules x

  • Hi Jo and Jules, St Andrews day this years was 30 years to the day I arrived in Oz, Goodness have spent longer here than I spent in Scotland, was only 23 then, newly married and willing to leave my family and ain folk for pastures new with my man,must have been gusty even then. Haha. Had a ball with son and family and only home for 1.5 days and heading back for another 5 days then back to Adelaide till approx 21/12 then off again. I am such a gallivanter. Been industrious this avo, watering gardening, made home made dog food, went op shopping - always good to pick up a bargain for littlies, got a Dora the explorer bag for granddaughter, walk clock from grandson and a box of colouring In books stickers for them to fight over or the pricley sum of $6 Kathy xxx
  • Hi Max, Saw on a recent post you Were feeling down. Hope you are feeling a bit brighter now , you are always so supportive of others. Oh I hate this lack. Of paragraphs Grisle , griisle bellyache. thinking of you Kathy xx
  • Hi Kathy

    Lovely to hear how much enjoyment you had with family and as you are 'here,there and everywhere during the coming month hope the good times continue as it will help to be busy enjoying the little ones.  Just love watching their faces when they are opening gifts.  Our grandson was 6 last Saturday and he was chuffed to bits with his present and the money in his card.  We were told that all his money gifts are going to help  him enjoy an after school science club next term which he is interested in which is lovely.

    Take care of yourself  - am just off to the kitchen to serve up 'chinese starters' as our late lunch - had to wait for hubby to 'come to'  as he has had a sleep following mid morning doughnut.  Virtual hugs sent your way. Jules x

  • Hi Jules, aren't the littlies such joy!!, great your grandson is so science orientated. I believe our littlies are our future. Who knows what cures they might find in the future. Hope hubby enjoyed The Chinese starters. Fighting cat for a view off screen, his method of telling me it's time for bed. Don't know why he thinks walking in front of screen and shoving his *** in my face would encourage me to retire to bed any earlier!! Dog already waiting for me getting his bonus points in early for tomorrow's early morning walk. - he's not daft.. Big hugs to you both, Kathy xx
  • Hi Kathy

    Half the Chinese managed  and then he slept again and then managed small spag  bol for late dinner - meal times now whenever he can manage to eat - cooking to order is the new me!!  He says its hard to keep his eyes open but these days usually happen after he has been 'out somewhere' as I think it takes all his efforts to manage those times.  Also have the emotion of attending a 'cheerio party' as his siblings all move to the Isle of Man (later this month) has definitely taken its toll which I had of course anticipated.  Hopefully with continued tlc we can keep him out of hospital for a little longer.

    Think you will soon be off visiting again and am not sure if you will have internet access but do hope you have a happy time with the grandchildren/family.  Hope that the Mother in Law is able to be helped more now that she is in hospital for treatment.  She is the same age as my Mum and sounds just as stubborn.  Visited my Mum yesterday for a little while (she is in residential care home at present) and they are trying to entice her to go on the Christmas outing but she hates this time of year so I do not fancy their chances.  Sending hugs and peaceful thoughts.  Jules x

  • Hi Kathy, just wanted to catch up on your thread and see how you're doing? I know you've got plans for Christmas and hopefully, you're not wearing yourself out with the garden and pets before you go! Take care, hugs Jo xx
  • Hi Jo and Jules, doing ok thanks, Christmas plans have gone a bit skewiiff as house sitter has health problems and unable to provide cover, but I have a few alternative plans to be put in place so I will manage a few days away although not for the full week as previously planned. Had to step into the breach left by hubby as felt mother in law not getting appropriate treatment, was transferred to a hospital closer to home and was not seen by a doctor for 6 days and no one to answer concerns/questions. She is doing well with walking etc so rehab doing very well . She had a recurrence of an old back problem which was giving her some problems plus I think a bit of depression so will be kept in till New Year. Anyway before escalating complaint to commissioner of health I rang the hospital to speak to director of nursing and lo and behold there was no mention of the privacy act and they gave me an update on her progress and action plan. They explained she was down due to loss of son, yes I replied quite understandable and I was his wife. Very sympathetically I was told I must have issues too. I am doing ok thank you very much , really gets my goat when people tell you how you should be feeling, there is no text book rules for this, we all cope differently and every method is ok. Mine is probably to keep busy but if it works.. do it. To cut a long story short miraculously m.i.l. was seen that day by a doctor - a victory for the little people. Some concern as to reason fall fall docs looking at a fit however m.i.l says no just a dizzy spell which she has for many years due to high blood pressure and meds for this. A brain scan scheduled next week to rule out a mini stroke (she had a stroke 10 years ago but made a good recovery). She has been put on endone for back pain but neither she or father in law can tell me what dose it is as a result has the usual side effects. Hubby started on that so I am aware of side effects and concoction of laxatives required to assist matters. Re the job situation have enrolled with centrelink our version of the dole and not able for any financial assistance till next Sept. The job network group I have gone to will help me with cv etc but not offering much more help as I am not long term unemployed and appear to be quite capable of finding work and my skills ok for similar work. May look at retraining in another field as have probably another 15 years of work left in me, but weather good and gardening quite therapeutic and will look at volunteer work after new year with palliative care unit nearby. Hope you and yer ain folk have a peaceful Christmas and New Year. Big hugs Kathy of the no paragraphs haha xx
  • Hi Kathy

    Not sure if you  have already set off to your son and family but just wanted to touch base before I hopefully begin to enjoy the festivities (just need to get work out of the way tomorrow morning!)

    Will be thinking of you and sending seasonal hugs for a peaceful Christmas. Jules x