Meningy what? Recent Meningioma diagnosis

Hi there, I have recently been diagnosed with a Meningioma (probably sphenoid wing) following an MRI and CT scan about 3 weeks ago now. I have been referred to Southampton Hospital and recieved a call from the neurologist yesterday who left me a message to reassure me that no immediate action was required and that my case was being discussed.

I had been suffering with severe headaches following an infection and thought it was just a migraine, although I had never suffered with migraines before. My GP was excellent and made an appointment at the Acute Medical Clinic in Poole where i had the scans and was given the probable diagnosis.I was told it was small, slow growing and benign - all great news but still I am left a little confused, still with headaches and not much the wiser about my little friend in my head! My b/f and I were left in a state of shock as we didnt really understand what was happening. I had taken some time off work to get my head around it ( pardon the pun). I'm a teacher and my school have been amazingly supportive. I'm looking for to returning after half term - as long as these darn headaches can ben controlled.

I rang the neurosurgeon's secretary yesterday who said that my case was being discussed today and that a management plan would be decided... I should hear soon.

So, in summary, there is something wrong with me but i'm not sure what will happen now. I've read far too much and all I really want to do is to talk with the consultant as I have lots of questions.

Has anyone else been diagnosed with a similar condition? I'm 35, female, no children and a little scared. Thank goodness for charities like this whom I have given time and money to but never once thought I would need to use.... Amazing people, thank you.

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    Much better thanks Debs.  Take good care and much love x

  • Hi Debbie I've been told I've got to have my meninginoma removed at Southampton hospital same week mum died so it's been a bad month. Now it's time for me to make my mind up which way to get it removed through the scull or through the nose either way sounds pants. Just wondering what way you had yours removed and what it's like. If I choose through the nose I'll loose all sense of smell but not sure on taste too. Any help would be great. Hope you're better now and everything went well. Many thanks Shirley
  • Hi shirley

     

    ive only just seen this - sorry!

     

    they had hoped to remove it via my nose but on the day decided it had to be a craniotomy. To be honest, I found it a strangely calming experience! It's a major op don't get me wrong but I was back at work after 12 weeks. I was tired for about 6 months but then pretty much back to normal. If you have any questions, let me know.

     

    debbie

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