So she found a lump...

She asks me if i can feel it... Hardly, i say, but it's there... The gp agreed. Hospital appt arranged for a week's time. Mammogram performed, biopsy done. Hmm... Not much to see - whatever it us it is probably benign. Another doctor will look at it.. Letter comes - another hospital appt a week later. Mammograms again, four biopsies, and an appt made for the following week to look at results and "discuss options". Initial finding of the lump had brought terror and a flood of worst-case scenarios that, despite being too awful to contemplate, were just to big to force down out of mind. The "discuss options" appt (yesterday) was attended with an air of resigned expectancy. Her mum had a mastectomy, her grandmother lost her life to it - there was no chance the news was going to be good. The lump was very small though, so perhaps not too much to be concerned about. The consultant showed us the mammogram image on the screen. He pointed out the initial lump. That was benign, he said, with a sad face, but here is what else we found... They were very small - barely detectable and wouldn't have been discovered for some years if she hadn't found the other, benign, lump - but they were there, a couple of inches apart and, (I'm afraid it is bad news...) "Here is the report...they are definitely tumours. They are small enough to be excised but the chances are there will be more. I recommend a mastectomy"...

"Okay. Can i have a double mastectomy please?"

The psychologist will want to speak to you...

"This is not unexpected - i have read extensively over the last week. It is what i want"

so the appointment with the scalpel has been set for April 1st.

we walk back to car park.

"I saw tears in your eyes," she says... " Why was that?"

" am so proud of you," i say truthfully - " If you hadn't found that lump and got it seen to, things could have been much worse..."

but she is frightened of the operation. The thought of the pain scares her very much. The financial impact worries her. How will our son get to school in the morning. As usual she thinks of others first...

we don't really know what to expect after the op ( and immediate reconstruction using expanders) how long will she be sore for? Will the pain be severe? How long before she can drive? How long before i can hold her in my arms and crush her to my chest the way she likes so much..

how should we feel - really?

  • Hi Jack

    Good luck with the jigsaw puzzle!

    I do hope this treatment goes well.  As regards the hair it feels as though it is coming out in great lumps but does not look like this.  In time she will probably have bald spots and other spots with quite a lot of hair.  It would be easier if it fell out in a more regulated manner so it just thinned more and more without bald spots.

    It is great that she took a few days off work when a colleague had a cold as this is the best thing she could have done.

    Best wishes and let us know how she gets on.

    Gill

  • Strange puzzle yesterday... jigsaw was different from picture on box... picture was of a certain scene and jigsaw was of same scene but 100 years later... anyway, I had much longer to do it as she was there for much longer today - bloods done first which took an hour, then another couple of hours for treatment - I fell asleep actually...

    She doesn't feel so great this time - we went to bed early (about half seven) and slept through. She wasn't feeling wonderful anyway so sleep probably best thing. She uses a wee bit of wig tape at the front - that has now managed to leave a wee bald bit at the front as she is losing more. We will see what the weekend brings but I think she will be staying at home mostly...

  • Hi Jack

    Sounds like they are trying to confuse you with the jigsaw puzzle!  Not suprised you fell asleep.

    I know with my chemo even though I had bloods taken day before I never got away before about 4.30 from getting there at 9am.

    It is not unusual to feel tired after chemo even though all you have done is sit there for hours so sleep will probably do her good.

    If she is not up to going to work just let her know she is not alone and that few people do manage to work while having chemo so she has done well so far.  As to the bald spot she will end up with more of these as more and more of he hair falls out.  After a while you really don't notice it that much.

    Best wishes.

    Gill

  • Off to work today - took a bit longer to get up off the floor this time. It's her birthday Friday and some of that will be spent at hospital... not sure what to get her. Can't really go out for a meal or anything - maybe I make something nice

    The hair thing is no big deal anymore it's how it is - although a bit ironic that the hairs on her legs haven't fallen out ha ha!

    Sunshine not as welcome as it would have been normally, but got some factor 25 when she remembers...

    I suppose it is all going as well as expected...

  • Hi Jacksnakes

    I told you the hair thing wouldn't be an issue, it's hard at first but you get used to it. I'm actually having mine cut ( well tidied up ) on Friday, it's growing quite quickly now.

    For her birthday I would get something nice In, that way you can take it or leave it if your wife is not up to eating it. Maybe a nice tablecloth and some flowers.

    I reckon your wife is over the worst bit, chemo is hard but you both know what to expect now so it gets easier, I think she's a strong woman from what you've said about her and you'll both be fine.

    Praying for you both, Dor xxx

  • Thanks Doreen. We'll be fine. I know there are a lot of people saying chemo is a walk in the park - well, it might be for some, but for some it certainly isn't and Deborah's sacrifice will not be easily forgotten.

    This is tough for her - she is only a wee scrap of a thing - although the "having to eat to take away the sick feeling" thing is making her slightly less wee than she was before this started...

    (Least of our worries I said we'll go on a diet after Christmas dinner ) and it is hard work for her just to stay in a reasonably good mood.

    Hope you are getting on okay these days. They giving you another leg?

  • Hi J.S

    I myself have to have more Chemo, dreading it, but I've had 1 session, spoken to people at the end of a 10 week cycle, so I am prepared, but still scared. Your wife is braver than she is giving herself credit for.

    I spoke to my Spine surgeon last week about my new leg, however he was very pessimistic saying I'd cost the NHS £150,000 so far, my leg would be another £100,00, which ( I wanna swear) " upset"  me no end.  Also said that it would be heavy and I wouldn't wear it. So unsure as yet.

    I'm still gonna ring the OCE, ( Oxford re enablement Centre) and give it a go.

    I hope you do manage to have a lovely day on Friday.

    Big hugs. Dor xx

  • Hi Jack

    Its great that she is coping well with the chemo and I know what you mean about the hair.  It is one of those things that seems so important before the chemo starts but once it is gone you do not even think about it.

    Sucks to spend part of her birthday in hospital and as for a present perhaps sme pretty scarves would go down well for when she does not want to wear the wig either that or some new books that she can read during chemo.

    Best wishes.

    Gill

  • We had a nice weekend... She has decided that in future a 'Birthday Week' or, at the very, very least, a 'Birthday Weekend' will be the minimum level of celebration and pampering We went for a drive on the Thursday, had lunch at the Blue Ball Inn in Sidford... I cooked a nice meal on Friday night and our son made a cheesecake with strawberries from the garden. Saturday and Sunday we did some work in the garden and the house and she had a rest.

    Third treatment this Thursday. She is dreading it really - this last one knocked her down more than the first one, which was an unpleasant surprise for her, so she is a little wary of this one. I hope this one goes a little easier for her - and that the jigsaw is fairly interesting...

    Last expansion was done on Friday so at least that is over. Getting close to the halfway point now, so soon there will be more behind us than in front of us.

    She is doing so well

  • You are certainly a supportive partner jack - your wife is doing well and will get through this. Look after yourself too! X