Hi Ron, 

Writing from Australia.

I got diagnosed with NSP cancer in late June, which got metastasised to neck lymph nodes, I tried alternative med from Mexico since then but I ended up in this hospital today with weakness/ weariness and shortness of breath. They want me to talk to radiology oncologist tomorrow morning and discuss about chemo and radiation so keeping me over night. I dreaded chemo and radiation for their likely side effects but it appears this cancer is winning at the moment. When I tried cannabis oil, it worked but it depressed me and its psychoactive component made me quit, since then, my L nodes became bigger and I started to feel weak and hard to breathe. Biopsy showed that I have Squamous cell carcinoma which was likely caused by Ebstein Bar Virus.... I am so afraid of the conventional treatment and they will Kill me if I get them now because of how weak I feel.... You’ve mentioned food mixer, is it food processor or regular blender? Any of your inputs will be greatly appreciated.

I quit smoking 15 years ago to start a family. I have two boys,15 and 8...

Hche

Hi,

Mine turns out SCC as well. I’ve been avoiding the chemo and radiation and been doing alternative tonic and pills but I needed up in hospital with weakness and shortness of breathing.

Lately my tongue feels a bit weird, swollen and tingling...

sincectge diagnosis I think It’s gone from stage 3 to 4...talking to an oncologist tomorrow to discussion options

did he have any symptom on his tongue?

many thanks in advance 

Hello Ron how are you. I read your experience on the board and I thank you for sharing and helping everyone. Would it be possible to ask a few questions of you if you feel up to it. Regards Ian.

Hi Ron

I have recently been diagnosed with a nasopharyngeal cancer, and found your post soooo hopeful! I am terrified of the treatment plan - x2 rounds of chemotherappy followed by combination chemo/radiotherapy - 12 weeks in total.

Nikki

Hi Ian

Just seen your post. I was diagnosed with nasopharyngeal cancer last week.

Sounds like you're recently diagnosed too? We may have the same questions to ask ...

Regards

Nikki

Hi Nikki how are you. It's certainly hard to get answers to a lot of questions I have but thanks so much for sharing. I was diagnosed 4 years ago with unknown primary cancer. I had my tonsils out and had radiotherapy and chemotherapy as well. The just recently I was told I had NPC. I have been trying to get answers for the past few months. I have had PET scan, MRI and CT scans. Still trying to get the right diagnosis. I hope I can get some answers soon. I had a biopsy surgery done and it was inconclusive. I am still trying to get an answer. Regards Ian. Would be great to chat Nikki.

Hey Ron how are you feeling brother. Regards Ian.

Hi Nikki did you get my post. 

Hey Ron did you get my post. 

Hi Ian

I am so sorry to hear you are still trying to get the correct diagnosis. Have you had further symptoms recently as it's 4 years since the unknown primary cancer diagnosis?

We have had similar investigations - MRI, PET-CT and neck lymph node biopsy. Most results in apart from whether or not it's EBV related. 

Where do you live? I am in Hampshire

Reagrds, Nikki