HI Ron this is GREAT NEWS!!!! I am the wife of someone going through this now and I would so appreciate ANY advice you could give us. I would love to know how to best support him. We have just completed two round of chemo and about to embark on the combo chemo and radiation for six weeks with five days on and two days off. It's all super scary however we have to remain positive and would love to hear from you! Also he is 44 and is stage two if this is of any relevance to your much appreciated advice. Carole. X

Hello Carol. Im sorry that you have had to contact me. I was 38 when I was diagnosed and had 38 radiotherapies in total and 4 METHETREXATE chemos. This was in 1995 and as I keep in contact with the people who saved my life I know that the way trearment is delivered is different but the timescale and chemo/radiot mix sounds similar. Does he have any spread to other areas? How did he discoover it? Is he or I hope was he a smoker? I was a smoker and maintain it caused the cancer following on from an operation to clear my ears which drain into where? Yes the postnasal space. I found a lump in my neck and told doc at hospital who was reviewing my op in Dec 94 and March 95 that I had a swelling in my neck and it was getting bigger. I was told it was virus then second time it must be an infection

My tumour when diagnosed was at T3/4 and M3/4 as I had 4 tumours in my lymph glands in my neck in a virtually mirror image positions as well as the primary.  Every treatment reacts to different people in different ways. The chemo was great I went from 10stone 12lbs to 13stone 6lbs. During radiot I lost weight.If you tell me what side effects your husband is having I could confirm I had them. Most likely he will have a mouth ulcer of two, lose hair at back of head, dry mouth, buy a bottle and top it up. I called it my Chateau De Tap. he may lose his senses of smell and taste temporarily. He may get slight burning on his neck.

How many hits of radiot a day does he get? I got 1 hit a day on nose, on either side of neck, on chin and a whole face one. What chemo is he getting?? Chemos differ for tumour type.

Tell your hubby that POSITIVE MENTAL ATTITUDE is worth 10 chemos and radios. Talk to the tumours. I told mine "I die you die at EXACTLY the same time ands me so you dont win." Lets live together. I started chemo on 26th June and radio on 18th July and finished on 22nd Sept. I was given all clear on 4th Dec as original neck tumour would not go away but it did. Regarding support people I worked thru my chemo and radio as cancer was NOT going to run my life. Have u got a food mixer?? You may need it to liquidise hubbys food.

Just be there for him

Hear soon

Ron

Hi Carole, 

We're so glad to see you have found someone to connect with on our forum :)

I noticed that you were asking if you can exchange emails and numbers. You cannot exchange personal details when posting on the forum as it breaks our terms and conditions however you can send private messages to each other. To find out more about how private messaging please click here.

Kind Regards, 

Steph, Cancer Chat Moderator

Thank you i have done this now! 

You're welcome :)

Hello Ron how are you. I read your experience on the board and I thank you for sharing and helping everyone. Would it be possible to ask a few questions of you if you feel up to it. Regards Ian.

Hi Ian

Just seen your post. I was diagnosed with nasopharyngeal cancer last week.

Sounds like you're recently diagnosed too? We may have the same questions to ask ...

Regards

Nikki

Hi Nikki how are you. It's certainly hard to get answers to a lot of questions I have but thanks so much for sharing. I was diagnosed 4 years ago with unknown primary cancer. I had my tonsils out and had radiotherapy and chemotherapy as well. The just recently I was told I had NPC. I have been trying to get answers for the past few months. I have had PET scan, MRI and CT scans. Still trying to get the right diagnosis. I hope I can get some answers soon. I had a biopsy surgery done and it was inconclusive. I am still trying to get an answer. Regards Ian. Would be great to chat Nikki.

Hey Ron how are you feeling brother. Regards Ian.

Hi Nikki did you get my post. 

Hey Ron did you get my post. 

Hi Ian

I am so sorry to hear you are still trying to get the correct diagnosis. Have you had further symptoms recently as it's 4 years since the unknown primary cancer diagnosis?

We have had similar investigations - MRI, PET-CT and neck lymph node biopsy. Most results in apart from whether or not it's EBV related. 

Where do you live? I am in Hampshire

Reagrds, Nikki

Hi Ian

I am so sorry to hear you are still trying to get the correct diagnosis. Have you had further symptoms recently as it's 4 years since the unknown primary cancer diagnosis?

We have had similar investigations - MRI, PET-CT and neck lymph node biopsy. Most results in apart from whether or not it's EBV related. 

Where do you live? I am in Hampshire

Reagrds, Nikki

I'm in Asia at the moment. No I have been healthy for the past 4 years. Only this year with flu and nasal congestion. Very heavy mucus. Many tests and surgical biopsy. I will have another surgical biopsy next week as I have an ulcer in the soft palet of my mouth. Now the Dr is thinking it could be lymphoma. Thanks for sharing Nikki.