Thank you for your reply Smokie1756 It is good to hear that you beat this. Is it Smokie1756 or Ron 

Cat

I'm in Asia at the moment. No I have been healthy for the past 4 years. Only this year with flu and nasal congestion. Very heavy mucus. Many tests and surgical biopsy. I will have another surgical biopsy next week as I have an ulcer in the soft palet of my mouth. Now the Dr is thinking it could be lymphoma. Thanks for sharing Nikki.

Hi Nikki, may I ask how you were diagnosed and what symptoms you had. It's not a common disease in the u.k. Regards Ian.

Hey there 

I was diagnosed with Npc the end of June this year due to start chemo on 21st July and to be truthly honest I am bricking it, just wandered how things are going for you 

Haven't been told much really only that I'm stage 4 nothing eles. Mine started with loss of hearing in right ear and headach/fullness on right side I've ha no lumps in neck that I've felt 

Be great to hear back and I hope all is going well

Hi villa1 ,

I didn't even ask my staging  at the time I didn't want to know I was just like let's do what we have to do after reading paper work tho I belive it was a stage 3 but had spread the lymph nodes (4) in my neck hence the lump. 

Chemo is different from person to person I was sick quiet a lot all through out chemo and radiotherapy. 

Trail and error with antisickness to find the right one. 

I finished my chemo in November i finished  radiotherapy in Dec I had my scan in March and it had showed that it had responded well to treatment and there was no signs in my head or neck  yea fingers crossed , however I have I just finished 4 weeks radiotherapy to my hip now. radiotherapy wasn't too easy but manageable with again different side effects for different people. 

I'm just waiting for my next scan to see where things are up too. 

My hearing did improve after my 1st chemo which was great but now it's variable and suffer from ringing tinnitus Too.

Will you be having  chemo and radiotherapy? 

I think this time will be the worse for you with the not knowing how you will react your head goes on over drive , try not to read up online too much about it different people have different story's some people get through tretement no issues I hope it's easy for you.

Male sure u relay on people for support I tried ti keep a lot of it it which didn't help me then when I opened up to friends and family it helped me much lore than I thought , utilise your nurse for any queries or problems,  I just send mine a quick text n she sorts things out for me. 

Tell your doctor any worries and any side effects if there is any as soon as they start so u can be on the ball with it.

I wish you all the best and strength throughout this xx

Hi Emzlt

Started my chemo today cisplatin and gemcitibine i have to have 3 rounds of this but not sure yet on radiation javemt been told 

Chemo should be finished in beginning of September fingers crossed