Introduce yourself on Cancer Chat

Hello everyone

Today marks a year since we launched the new Cancer Chat, how time flies! In the last 12 months we've shared our stories, laughed and cried and become a real community so I thought it was about time that  we introduced ourselves to you properly.

I'm Sarah and I'm the Cancer Chat manager. I have managed other online communities before coming to Cancer Research UK and am a cancer survivor myself. I went through my treatment in 2009, and so I know how helpful and supportive Cancer Chat can be from personal experience.

There are three moderators who work with me, Renata, Jane and Lucie. All three moderators juggle their Cancer Chat duties with their roles as busy mums and work different shifts throughout the week to ensure that Cancer Chat is appropriately moderated. They help direct members to appropriate information on our main Cancer Research UK website and liaise closely with the specialist nurse team to help answer questions or offer support. Above all, they ensure that Cancer Chat is a safe, secure and welcoming place where anyone affected by cancer can come and ask questions, share experiences and meet people who are also affected by cancer.

We thought it would be fun to tell you a few interesting facts and also share our new avatars which you'll be seeing whenever we are online.

Sarah - is a 70s music addict

Renata - is a mad George Michael fan

Jane -  is a journalist

Lucie - is French

Now it's your turn! We'd love to know more about you, so we've set up this new topic area where you can introduce yourselves and say hello to new members. Don't forget everything is public so don't disclose anything too personal!!

Best Wishes

Sarah

  • Hi hope

    If you are like me you wont as much suport as possible and any information you can get your hands on. I can only tell you about my experance but will be any suport I can be to you and your family.

    M

  • hi my name is wendy and im 40 yrs old . i lost my dad to lung cancer 12 yrs ago and now my mother has been given up to a year for the same. i am sad , i am tearful and i am thinking how on earth am i going to tell my children when do i tell my children. well one i wont have to really as he is under 2yrs but my very sensitive very loving caring and beautiful daughter is 7 yrs old and loves her grandma so so much,

    i go to mums almost every day which has gone up since diagnosis as i used to go about four times a week but now six or seven. i want to ask her is she is afraid, i want to hold her and never let go.

    this is difficult really as i think i knew this would come, mum had breast cancer  the year dad died , she has slowley given up going out untill 6yrs ago she stopped completly. she says and i spose i agree the amount of pain she is in and with going out making it worse for days she felt it was not worth it.my mum has been in great pain for years due to other medical conditions and so really dying will be i spose a relief, with that she will be reunited with my dad which being apart from him has been the worst for her they are and were one . but all this does not seem to be making it any easier for me to manage, knowing that at aome point this year i will lose my mum, have just tried to look for mothers day gift and what do i get her?? its the last mothersday present i will ever be able to buy my mum how do i show her what she means to me what possible gift would pass on to her everything i feel for this amazing person. and so i just sat and cried instead.

    then i thought i think i need to find a place i can get help sorting all this out and found you all so fingers crossed i may get some help sorting my head out. get supposrt for the months ahead and maybe feel not quite so alone.

    i do have siblings but i am the only single one and they both work and i dont and they are always busy. so here i am. saying hello. x

  • Hi Bethsmum

    Welcome to Cancer Chat and sorry to read about your mum. There are others here who will understand how you are feeling. You could, for instance, have a look at this discussion and post a message there if you wanted. Alternatively, you could start your own discussion and give it a clear subject title so that others can find you easily.

    When it comes to talking to your daughter, we have some information about this on our patient information website.

    I hope this helps.

    Best wishes

    Jane

  • Welcome lorr25

    What a horrible club we all belong to.  My husband Ian had Avastin yesterday and is having chemo tomorrow  and its a really tough time but I wanted to reach out to you before we both head for bed and try and get some sleep.  I told Ian's "story" for lyn_ho.  I think you'll be able to find it by clicking my picture and profile because I just don't have the energy to tell it again.  These are tough, tough times we all face - tougher than we ever imagine when we stand at the top of the church aisle and make our vows.  Tough emotionally, tough physically and tough financially.  Keep posting lorr25 and we'll all try to help you get through.

    elkay

  • Greetings to one and all,

    My name is Nigel and I am British and live in Saskatoon Canada...I have been here since 2006. I shall cut my story short only to say that after many tests I was told that my CLL started in 2008 but was only found last year, and just to make me feel great I have osteoarthrits in the lumbar and cervical regions of my neck. as soon as the winter ends we are going to return to Blighty....also lucky for me my Dr at the cancer centre here in saskatoon was mentored by the late Prof Terry Hamblin. I have spent the last year reading and learning but will have some questions I shal post on ask the nurse....it's better to do it here..there is never any type of urgency here....I have still not had a call from my allocated social carer yet...I have learnt that I do have some CD markers with some very high %.

    I am 56 soon and the doc said it could be the fact I spent most of my life in the Army that has done my back in, I am rather young to get degenerative disc disorder....I also have a lumpy prostate and have been given a date to see a doc..took 7 months to get appointment, also have to se a gastroentrologist soon which also took 8 months.....there seems to be such a serious lack of talking amongst the medical people out here. My cancer doc is concerned about my stomach yet no one does anything in a rush or gives you priority....my wife hates it. I have 4 children out here and eight grand kids so they come visit in summer. I think being retired from the military has helped me cope with the strain and i was naughty and did not tell me wife until about 6 weeks ago.....i got to be honest and i know it may seem strange for many to understand my views....but i am not bothered to much....i have been lucky enough to survive a few near things in my career, i am returning to England and going to grab my couple of pensions  and graturities, and just go with the flow.

    I was due to visit my oncologist on april 11th but they cancelled, and not even returned my call as to why....I have seen some posts and my heart goes to so many....i don't want to be treated any other way from normal...i have told my wife i do not need nor want pity..just understand as best she can about how i may feel from day to day....i have my future planned because this nasty little thing that has taken over my body will not win without one hell of a fight from this old soldier. as i sit here in my living room looking out at the sun rise over the lake and the trees to my east,such a great blood red colour,birds in my garden getting feed as the spring starts to roll in..i have decided that i intend to see at least another 2000 days like this maybe more....lol..chins up people,british spirit and all that....i see people here at the centre and they look as if they really don.t want to carry on....wrong,wrong,wrong. thoughts to those fighting this thing and also to the care givers who must at times feel so down...we need you even if we don't show it at times. You are as important as any medicine can be.

    I look forward to reading these forums and seeing what else there is for me to ingest.

  • Hi everyone, I am new to this site. I posted a bit of my story late last night on the sight hoping that I could connect with someone who could give me some insight on what I am going through. I just had an excisional biopsy done a week ago and I had some results that were confusing. In any case, I have had a very intensive background with cancer and if you would like to read up on my background please feel free to do so as it is to much to type on here. I am in a really tough spot right now and if any of you can offer any advice or insight I would really appreciate that. I came across this site accidentally and it is great to see that many of you have found support . I am looking for someone who has any knowledge with hodgkins lymphoma that can answer some questions and maybe just chat. My support system is not the greatest, I have a 15 yr daughter and 12 yr old son, and thats pretty much it. I have had cancer in the past, and I made it through. Somehow this time feels different , my oncologist was 100% certain that this biopsy would show that I did have hodgkins lymphoma. The results were a little surprising, oncologist still insist that maybe the pathologist made an error, so now she wants another specialist to look at the results. Every symptom I have is indicative of this disease. I am at a complete loss. If you can help even just talking with me that would be great. I understand that pathologist have made errors before in diagnosing this. This is a frightening place to be, and it is unimaginable that these specialists can make such errors. I am at a loss and just really need someone to talk to. By the way my name is Molly. My full story is listed if you are interested in knowing my full background with cancer. It is pretty extensive. Thanks for listening to me rambling on. 

  • Hello abritincanada,

    And welcome to the forum! I love your positivity and also your description of the view from your living room made me dream - the landscape sounds absolutely stunning!

    I hope you will meet lots of nice people here - why don't you start your own new thread and tell us more about yourself?

    Also, you mentioned you are going to post on Ask the Nurses, don't hesitate to ask them anything you want: they are really friendly and are only too happy to help.

    So enjoy Cancer Chat and I hope you will "ingest" , as you say, lots of nice things here and meet people in the same boat as you.

    Best wishes,

    Lucie, Cancer Chat Moderator

  • Hello spanishgirl,

    I have read your story in your other thread and just wanted you to know you are not alone and that you have come to the right place to talk about Hodgkins Lymphoma. Let us know on your other thread what you have found out - whether the pathologist made an error.

    In the meantime, I thought this thread  by Chrissie who is a Hodgkins Lymphoma survivor might be of interest to you. It a bit of an old thread, but feel free to post there and I hope she will pick it up and that you will soon chat with others with lymphoma.

    Best wishes and a big welcome to Cancer Chat,

    Lucie, Cancer Chat Moderator

  • Hello,


    My son was diagnosed with a brain tumour in January 2012. After 2 biopsies it was confirmed as a grade 4 glioblastoma multiform in the thalamus. He is 22 years old, in his final year of university and a sports fanatic. He doesn't believe in sitting still!

    In the weeks since diagnosis he has been in and out of hospital, had 3 brain operations and is currently in a hospice. The tumour is inoperable and the biopsies have left him with right sided weakness and speech difficulties. Three and a half weeks ago we were told he had 2 days to live.

    He is strong and positive and since then has improved so much he has now been offered radio and chemotherapy.

    As a family we are totally shattered. Life can never be the same again for our son. Will he ever play football or golf again? Will he walk or talk properly? What will his remaining life be like?

    I would love to hear from anyone in the same or similar position. This type of tumour is particularly aggressive and we would like to share the experiences of others.

    xxx

  • Hi Dudley,

    So heart wrenching to hear about such an aspiring young person being over taken by such a evil thing. I can't give you any help on his condition,but I think many will agree when i say that he seems to be a fighter and to help him keep fighting you and your family must show strength. We all know how hard that may seem and easy to say, but this is the right place to feel the love and strength of so many. He will need to see that all his family and friends walk in to see him with confidence gleaming in thier eyes, he will draw the will power to keep fighting. As a retired military person I sure know the power of willpower....show him strength even if you find it hard and he will  bounce back. At times you will have to make him do things he may feel like not doing, manipulate him and he will gain strength...above all other make sure he eats well. recovery with a body full of good vitamins etc; sure helps.

    It may well be a long and hard road to walk but we know on here that when you have friends and family beside you it sure helps. I wish him well and wish you and all your family good luck.

    nigel