Hi Linda,

Sorry cant identify with your condition as i have BC but would like to wish you the best of luck with your treatment.I hope it is a success.

Rose xxx

Thanks for your message. got my date today for surgery in a fortnight. im not having any luck in finding anybody else with this flamin' disease. ive been told

its rare but im sure im not the only person in the country who has it!!! never mind... onwards and upwards.... hope your treatment is going well. x

Linda,

I'm glad you came back because after your first post I googled Pagets of the Vulva in an attempt to find out more and there is virtually no information available....

Just a thought but is your surgeon able to put you in touch with anyone else that's gone through this? Or maybe your GP may be able to talk to other GP's or friends who are involved in the medical profession who may be aware of someone in the same boat....I can see that it would be really helpful for you to have contact with someone going through the same procedures and concerns.

My thoughts are with you - let us know how you get on with your surgery

Dizzie xx

Linda,

I'm glad you came back because after your first post I googled Pagets of the Vulva in an attempt to find out more and there is virtually no information available....

Just a thought but is your surgeon able to put you in touch with anyone else that's gone through this? Or maybe your GP may be able to talk to other GP's or friends who are involved in the medical profession who may be aware of someone in the same boat....I can see that it would be really helpful for you to have contact with someone going through the same procedures and concerns.

My thoughts are with you - let us know how you get on with your surgery

Dizzie xx