Hi everyone, I found this site this evening following a consultation into a pelvic mass ("multiloculated cyst or possible endometriosis") this afternoon. Tests are still ongoing, I have an MRI tomorrow afternoon, but GP and Consultant are talking it is potentially cancerous. CA 125 was 98, and am awaiting results on two additional blood tests taken today.
In 2018 I had a total hysterectomy for enlarged fibroids. Only on the operating table was it discovered I had severe endometriosis. This led to one fibroid and one fallopian tube having to be left in. My ovaries were always intended to stay but the surgeon said the endometriosis was so bad they weren't coming out anyway. Uterus was sent for testing, results showed non cancerous.
8 years on, now 52, I am facing surgery again; Consultant was clear that the mass had to come out regardless. The worrying has already started - is it cancerous? what about the endometriosis? Letter says ovaries to come out - but how, if they weren't coming out last time?
I don't understand why my body is doing this.
Anyway .. I joined this site because when I had my hysterectomy in 2018 the only thing that got me through was a forum for those having hysterectomies. Without that site and being able to talk to others in my position I really don't know how I would have got through such an uncertain time in my life. I totally believe in connection and support, and hope I can find that here in others with similar experiences, as well as hopefully being able to support others in return.
Best wishes
Mrs D x
