Hello! 3 different cancer referrals in 3 years, recurrent bladder cancer, finding it hard

Hello! In the last 3 years I’ve had 3 different cancer referrals, the first was for a tumour found in my bladder during an ultrasound, it has returned 3 times, I’ve had 3 TURBT s the first under general as the tumour was very large, the others have been smaller as they have been giving me check ups every 6 months, I had mitomycin after the first TURBT and a 6 week infusion of it into the bladder last August. I have just found out it’s recurred again and am waiting for another TURBT and was wondering if anyone else here has recurring non muscle invasive bladder cancer and what the treatment is if it keeps on recurring.

i also had an abnormal smear test at the end of last year with high grade changes. I had two surgeries on my cervix as on the first one there was no boundaries. I just had my 6 month smear test and it really hurt. The nurse had a hard time finding my cervix (they took a lot of it away) and it was very painful and I am bleeding more than i normally would after a smear and I was wondering if this is normal post surgery? Also, what percentage of people still have hpv on their first smear and what the treatment is from there if they do.

i also was referred this year for possible skin cancer, I’ve had the mole removed now and it was dysplastic, my dad died from melanoma so it is a concern for me and I wondered if any other people here have had dysplastic moles and then melanoma.

Also, is it weird to have abnormal cells growing in different parts of your body? Are there people here who have experience of different kinds of cancers? Im not in high risk groups for these cancers, is there an infection that can cause different cancers? It’s probably an unanswerable why question really, but I’d really like to not have this happening to me, it’s almost embarrassing now to tell anyone because it’s happening so often. I left work because I was so embarrassed by all the time I was having to take off work.

none of this has been life threatening but they’ve felt like they could be whilst waiting for results, and it’s really played on my mental health, especially the recurrence and having to repeat so many procedures. I keep trying to stay well mentally, how do you stay positive? I am really trying. I feel like a fraud too, as right now im not fighting for my life like so many others, but the constant checks and procedures im finding really hard going. The nursing staff are all so nice but im finding it really hard.

  • Hello Southdowns, 

    3 different cancer referrals in 3 years - that is indeed a lot to have to go through and I can imagine it triggered quite a lot of anxiety at the time. I am so sorry too that you had to deal with recurrent bladder cancer and that you are currently waiting to have another TURBT. I hope that you will hear from other members of our community who are in a similar position to you and waiting to have another TURBT after having recurring non muscle invasive bladder cancer. Feel free to use our search function which is located at the top of the page to find other threads from members affected bladder cancer.  

    Regarding your question on the bleeding you experienced after your smear test, I think it would be a good idea just to flag this with your doctor and checking if it is to be expected. Make sure you give your doctor all the details of what happened as well as the context and you could also take the opportunity to ask the doctor whether they can answer your question about HPV. 

    I hope that you will also hear from other people on here who have had a similar experience to you with moles being removed who also had dysplastic moles and who have also had experience of different cancers. You've certainly been through a lot recently with it all happening simultaneously and I am not surprised that you had to take so much time off work and I hope that things improve for you so you can have a bit of normality again. 

    I completely understand why you are finding this hard going and relentless and you are certainly not a fraud. I am glad that the nursing staff are all very nice but if you are feeling that your mental health is being impacted, I would perhaps also mention this to your GP as I am sure they will be able to help you or give you some strategies to help you feel better mentally while you are going through this really anxious time. While you are waiting for answers or clarity on these questions, I thought I would also share with you our helpful tips to help you cope while waiting for news

    It might be worth talking all this through with our cancer nurses so don't hesitate to give them a call on this free number 0808 800 4040 - their helpline is open Monday to Friday from 9am to 5pm. 

    I hope that you will hear from other members of our community who have been through something similar whether it is bladder cancer, dysplastic moles or abnormal cells. It helps to talk to others who have been in a similar situation and who understand how hard it has been for you. 

    I hope you find out more soon and that you get a bit more clarity and reassurance after you have spoken to your doctor about these issues that have been understandably playing on your mind. 

    Best wishes, 

    Lucie, Cancer Chat Moderator