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Anyone diagnosed with triple negative invasive lobular carcinoma

Chiclilly
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Hello , im here as I've been told I have a rare condition been a triple negative invasive lobular carcinoma, i have tried to find a group that has my condition, the more I've looked im feeling very alone with it , i have caught it very early i go for my lumpectomy on the 26th of May plus they said they will l be removing lymph nodes, has anyone been through or going through this kind of cancer and is doing really well or just to give me advice going forward, i can't thank the group enough, im a very postive person and i know I've lots of fight in me , my daughter calls me a worrier princess , it be so lovely to feel im not all by myself thank you everyone xx 

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    So sorry to hear you’re also going through this. I was diagnosed last week and am currently waiting on a CT scan to check for spread, and for an initial course of chemo to start. I’ve been told to expect six cycles, every three weeks, followed by surgery. Like you, I’m a very positive person and have decided that rather than let this consume every part of my life, I’m tackling this head on and appreciating every day, even the bad ones, and hoping I can share my own story one day of coming out the other side. Assuming you’re in the UK, join the Facebook group Triple Negative Breast Cancer UK and Ireland (TNBC) Support. There are so many people there starting their journey like us, or have shared stories coming out the other side.

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    So sorry to hear you’re also going through this. I was diagnosed last week and am currently waiting on a CT scan to check for spread, and for an initial course of chemo to start. I’ve been told to expect six cycles, every three weeks, followed by surgery. Like you, I’m a very positive person and have decided that rather than let this consume every part of my life, I’m tackling this head on and appreciating every day, even the bad ones, and hoping I can share my own story one day of coming out the other side. Assuming you’re in the UK, join the Facebook group Triple Negative Breast Cancer UK and Ireland (TNBC) Support. There are so many people there starting their journey like us, or have shared stories coming out the other side.

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