Anyone diagnosed with triple negative invasive lobular carcinoma

Hello , im here as I've been told I have a rare condition been a triple negative invasive lobular carcinoma, i have tried to find a group that has my condition, the more I've looked im feeling very alone with it , i have caught it very early i go for my lumpectomy on the 26th of May plus they said they will l be removing lymph nodes, has anyone been through or going through this kind of cancer and is doing really well or just to give me advice going forward, i can't thank the group enough, im a very postive person and i know I've lots of fight in me , my daughter calls me a worrier princess , it be so lovely to feel im not all by myself thank you everyone xx 

  • Tell us what the doctors say. I hope you feel better soon. Please call the useful helpline 0808 800 4040 to talk to a helpful nurse. Good luck and you can do this. We are all here with you. 

  • Thank you for your reply, i will let you know how i get on,  just so anyone else with my condition will have something to go by going on my journey, who know what tomorrow will bring , but one thing i shall be smiling and staying positive and strong through out , please take care of you , we have this fight together , sending healing hugs and my love xx

  • Hello Chiclilly

    I'm sorry to hear that you've recently been diagnosed with TNBC. It's understandable that you're feeling overwhelmed by things at the moment. 

    It sounds like you've got good support from your daughter, and having a positive approach to this will certainly help in those moments when things feel particularly tough. 

    There's another member,  who has recently posted about her diagnosis of TNBC. You can read her story on this thread, where you'll find some other ladies who are currently going through treatment for other types of breast cancer have also been chatting and supporting each other. Hopefully you'll be able to connect with other women to help you feel not so alone as you begin your treatment journey. 

    If it would help to talk with one of our team of nurses at any point, you're most welcome to give them a call. I know they will be happy to listen and offer any advice, information and support they can. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    Keep in touch and let us know how you get on Chiclilly. We're here for you. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • So sorry to hear you’re also going through this. I was diagnosed last week and am currently waiting on a CT scan to check for spread, and for an initial course of chemo to start. I’ve been told to expect six cycles, every three weeks, followed by surgery. Like you, I’m a very positive person and have decided that rather than let this consume every part of my life, I’m tackling this head on and appreciating every day, even the bad ones, and hoping I can share my own story one day of coming out the other side. I’d suggest following gemma_Isaacs on instagram - she was diagnosed TNBC very young and has made a full recovery and offers lots of positive advice, and also, assuming you’re in the UK, join the Facebook group Triple Negative Breast Cancer UK and Ireland (TNBC) Support. There are so many people there starting their journey like us, or have shared stories coming out the other side.