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endometrial cancer screening

cleopatra66
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I’ve got heavy bleeding on and off on HRT at Almost 60 I have multiple other complex chronic health conditions 

severe ME

scoliosis 

osteoarthritis 

Subclinical hyperthyroidism ( Graves ) and suspected Thyroid eye disease p

adhd and severe depression and anxiety including phobic anxiety 

I have severe sensory overload and using screens is painful  from photo phobia and I can’t make this screen dark 

Im very isolafedd and stressed 

im due to go for screening Friday ,I struggle to get out of bed. Due to extreme weakness extreme ex and fatigue. I think it’s possibly that I am burning through progesterone due to thyroid problems that they refuse to treat despite extreme symptoms. I unfdeestand that nit enough when younger I suffered. Frommmenom progesterone can cause break through bleeding l it is very heavy what can I do to reduce it ? When Young I suffered from menoraeghia , needing 6 pints of red blood cells transfusion twice at 20 then put on pill 

I have a phobia of medical procedures especially being penetrated due to sexual trauma and pain phobia worsened by two batholins cysts at entrance to vagina making internal  exams agony 

I have asks for sedation thru have refused

i can jharfky get out of bed let alone get to hospital for all this 

I have no carer as former one was an abuser 

I don’t know how I will cope . O

i live in inaccessible housing ,no wheelchair  and housing and social service been a huge source of chronic stress for so please do not suggest i contact them 

My eyes are burning up writing this 

I feel and l’ok like Im dying 

sorry this i so negative i. Feel overwhelmed and hopeles atm 

  • Hello Cleopatra66,

    Thank you for posting and I'm very sorry to hear how you're feeling. 

    It seems like you've had a difficult time getting the care you want, which is a shame to hear. If you're unhappy or feel like you haven't been listened to, you can make a complaint at the clinic or you can also look for a second opinion. It's important that you feel heard every step of the way so do keep speaking up.

    If you're finding things overwhelming, there is guidance on the Anxiety UK website, which might have some useful advice ahead of your appointment on Friday. There is also information on our website about getting diagnosed with endometrial cancer, including the different tests available and tips to getting the most out of appointments.   

    Also I'd suggest with anything that requires you to read on screen for a long time that you print it out, perhaps at home if you have a printer or, if possible, you can ask a friend to go to a local library or internet cafe to print it for you. On all the links I've added you can right-click on the page and select "open in reading mode", then highlight the text you want read out. This can help reduce the effects screen time on your eyes and allow you to process the information better.   

    I do hope this helps in some small way and let us know how Friday's appointment goes!

    Moderator Anastasia

  • Hello Cleopatra66,
    I’m reaching out again because we’ve been thinking about you and want to make sure you feel as supported as possible right now.
    We understand that you’ve had very stressful experiences with housing and social services in the past, so we won't suggest contacting them. However, it sounds like you need someone "in your corner" right now to help navigate these medical appointments. If there is a trusted neighbour or a relative you feel comfortable with, perhaps they could help you deal with the authorities or even just be there to help ensure your voice is heard.
    Beyond reaching out to someone you know personally, there are a few other avenues that might offer a different kind of support. You might find it helpful to contact Citizens Advice; they are often great at helping navigate these complex systems without the direct involvement of social services. It might also be worth having a very specific chat with your GP about your concerns regarding your thyroid symptoms and how you feel you’re burning through progesterone.
    If you feel comfortable talking on the phone, I would also really encourage you to speak with our team of nurses. They are incredibly kind and used to talking through both the medical side of things. You can reach them on freephone 0808 800 4040. The lines are open Monday to Friday, 9am to 5pm. 
    Since we know using screens is so painful for you right now, please don't feel any pressure to reply to this. We are simply here whenever you need us.
    Wishing you as much strength as possible for tomorrow.
    All the best,
    Renata, Cancer Chat Moderator

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