Hello Fi33

I'm sorry to hear that you've recently been diagnosed with HPV tonsil cancer. It's understandable that you may have lots of questions and concerns about this diagnosis and the recommended treatment plan. 

I wanted to try and put you in touch with one of our long-term members RadioactiveRaz aka Hazel, who I know has had radiotherapy for tonsil cancer. Hazel kept a blog during her treatment, and I know that some of the other community members have commented that they found it useful to read through and picked up lots of tips and advice for their own journey. Hazel is often found trekking around sunnier climes, but hopefully she will pop by to say hello! before too long. In the meantime, you might want to have a look through this thread where other members have shared their experiences of radiotherapy for different head and neck cancers. 

If it would help to talk things through with one of our nurses, then you're most welcome to give them a call. I know they will be happy to listen and offer any advice, information and support they can. They're available Monday to Friday, 9am to 5pm on 0808 800 4040. 

Keep in touch Fi33 and let us know how you get on. We're here to support you through the journey ahead. 

Best wishes, 
Jenn
Cancer Chat moderator 

Hi Radiotherapy or radiotherapy with chemo is the gold standard treatment for hpv driven tonsil cancer. I’m fast approaching 8 years since my treatment was started. I’m living a fab life. Treatments hard but if I can do it anyone can. My blog and the thread might help 

www.radioactiveraz.wordpress.com

ask any questions happy to help 

hnc do respond well to treatment with excellent cure rates. 

Hazel xx 

Thanks Jen yes I’m in Spain flying home at weekend. Almost 8! years now where time gone always happy to tell. Thanks fir remembering me 

hope you’re eell

hazel x

Thank you Hazel. Enjoy Spain.

Thank you. Happy to help if you’ve any questions 

it’s frightening but one step at a time one day at a time. You’ll get there 

Hazelx 

Hi, I was diagnosed about 4 weeks ago. All seems a bit surreal at the moment. Had all scans and found out that it has not spread thankfully and now going in for tonsil biopsy on 11th May. What do I expect after this??xx

Hi usually  biopsy tesuktsxare analysis and s m d t meets that’s a multidisciplinary team will meet to discuss. You’ll then be so amazing with your oncologist and the plan will be given usually if had neck cancer. It’s chemo and radiotherapy they’ll be CT scan  then the radiotherapy mask will be made and planning by radiotherapy team will ge created  once yih know what’s happening your mind tends to settle down  

hugs Hazel x