I was diagnosed with a neuroendocrine tumour on my small intestine on 17 December 2025

Hi im new i was diagnosed with a neuroendocrine tumour on my small intestine on the 17th December 2025 and i feel like my whole world was turned up side down i am due to have endoscopy to remove the tumor but i am scared it has spread as i have new symptoms like my bowel movements have changed i used to go only once or twice every 2 weeks or more but lately i have been going sometimes twice a day and its thick and lumpy (sorry for the details) and i get pain everytime I go is this anything to worry about  

Thankyou for listening 

  • Hello Kerry86

    I'm sorry to hear that you were diagnosed with a small bowel neuroendocrine cancer in December. It's understandable that you feel like your world has been turned upside down since the diagnosis. 

    You don't mention in your post if you have a date planned for the upcoming surgery. Hopefully, it's not too far away, but it's certainly worth giving your specialist cancer nurse a call to let them know about the new symptoms you've developed if you've not already done so. Hopefully, they will be able to give you some reassurance. 

    In the meantime, if you'd like to talk things through with one of our team of nurses, you're welcome to give them a call. I know they will be happy to listen and offer any advice, information and support they can. They're available Monday to Friday, 9am to 5pm on 0808 800 4040. 

    Hopefully, you can get some answers and reassurance soon Kerry86. Do keep in touch and let us know how you get on - we're here for you. 

    Best wishes, 
    Jenn
    Cancer Chat moderator