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Diagnosed with prostate cancer in 2012. On prostap and a drug called Enzalutomide. No strength/energy, bones are creaking

Baxtermyboy
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Hi Guys,

New to this site so I may ramble a bit.

Diagnosed with prostate cancer PSA 28 Gleeson 8 in September 2012. Radiotherapy 38 sessions and 30 months on prostap and all appeared fine and was taken off all meds.

Fast forward to 2020 and got a swelling in my groin and under the knife for a ruptured hernia. No hernia but lots of lymph nodes removed and straight back to the oncologist.

Middle of Covid so no Chemo but back on prostap and a drug called Enzalutomide. 

I am now on cycle 70'ish of the Enzalutomide (now on half dose daily 2xtabs) and my PSA is 0.05 and has been for 4+years.

I am now becoming  weary,  no strength/energy, bones are creaking and cracking and very tired.

I am seeing my oncologist again in a week and although I kinda know that he will want me to continue, do I have options as I feel like I'm on a trial and there has to be something better for my quality of life or am I between a rock and a hard place.

Maybe I'm looking for an impossible solution, is there one?!

  • Hello Baxtermyboy

    I'm sorry to hear that you're struggling with your health. It sounds like it's really taking a toll on you at the moment and it's understandable that you're wondering if there might be other treatment options available for you. 

    Fatigue is a well-documented side effect of Enzalutamide and coping with fatigue can be really difficult. It's good to hear that you have an appointment with your oncologist in the next week. I'd really encourage you to let them know just how much you're struggling and have an open conversation about what is important to you in terms of your quality of life. 

    If you think it might help to chat things through with one of our nurses before seeing the specialist, you're welcome to call them on 0808 800 4040, Monday to Friday, 9am to 5pm. I know they will be happy to listen and offer any advice, information and support they can. 

    I do hope that your appointment next week gives you some answers. Let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

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