Newby with metastatic breast cancer (liver & spine) 2 weeks post chemo round 1. Not sure how to feel other than a but helpless?

Hey! I'm Gem. I'm a 43 yrold homeless Recovery Support Worker for young adults. Currently iving on the south coast with a neurospicy boyfriend, a dick head of a cat, a snake & bearded dragon..

I had my biopsy & scan results on 11th September this year and had my first round of chemo/hormone treatment on 3rd November. The diagnosis was metastatic breast cancer which has metastised into my spine and liver. They says its incurable but manageable with treatment.

My skin looks awful, blotchy and dry and my mouth a terribly sore with ulcers, I'm still able to eat and drink and my fatigue levels, at present, are OK. I'm still able to go for a short walk and some fresh air if needed most days 

I HATE seeing my partner struggling with his adhd whilst working and trying to help take care of me and our home. I've always been the support worker of the family. I grew up as a young carer for my severely disabled mum and am in no way used to letting people do things for me.

I don't really have any questions, it's all juat a lot isn't it? I don't even feel like it's real, I didn't feel poorly, I haven't been walking round feeling all "cancery" proir to diagnosis and at present, I would say the chemo is making me feel worse than the cancer had been.

Fortunately, I have a dark sense of humor and a "surviving out of spite" attitude that I'm relying on to get me through this! 

  • Hello G3m1lyStr4ng3 and welcome to the Cancer Chat community. 

    I'm sorry to hear about your diagnosis. Undoubtedly, this will have been difficult news to hear, but it's good to know that the team have already been able to start a treatment programme and hopefully you're being well supported by the specialists, family, friends and your menagerie of animals (the cat sounds like a hoot!). 

    Having a good support system is key when you're going through cancer treatment but it can be difficult sometimes to accept the help that is offered. Particularly when you've always been the one in the role of carer. Having to learn to accept help, when needed, and not to be the one who is always offering help to others, can be a challenge! Not one that's always easy when your nature is to be the giver, but it sounds from your post as if you have a good insight into your situation, and hopefully, you and your partner will find a new routine that meets both your needs as best as possible. 

    In terms of the physical side effects you've been experiencing after this first round, please do speak with your oncology team, who will be able to recommend or prescribe things to help with your ulcers and skin care. 

    I certainly think that your dark humour and sense of "surviving out of spite" will stand you in good stead as you embark on this new journey! Finding humour in things, even when others might quake at the laughter, can be an incredibly powerful tool in darker moments. Along with getting out and about for some light exercise and fresh air, hopefull,y these things will help you as you face the challenges ahead. 

    Do have a chat with your specialist or nurse as well to see what support is available in your local area. It may be that there is a Maggie's in your local area or another charity or service that you can access if you feel it might be helpful to talk with someone or meet others who are in similar situations. 

    If at any time you'd like to talk things through with one of our nurses, you're most welcome to give them a call. I know they will be happy to offer any advice, information and support they can. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    Keep in touch here with us at Cancer Chat if it helps to have a safe space to put down in writing how you're feeling, ask questions or chat with others who understand. We're here for you. 

    Best wishes, 
    Jenn
    Cancer Chat moderator