Undergoing investigation for suspected ovarian cancer

Hi,

I am new to the forum. I am 51 with a 12yo son, a lovely partner and also a beautiful labrador that won't leave my side as he knows Mum is poorly.

I have had blood tests/ ultrasound  for suspected ovarian cancer. I see a specialist next week for diagnosis. My symptoms are many but the worst is currently fluid retention in my abdomen. I'm booked in to have it drained in a few days, this cannot come soon enough. I have been referred for a CT scan too as the ultrasound wasn't clear due to the fluid build up. The scan did show a mass that needs addressing.

My head is spiralling and the unknown future is terrifying. I'm reaching out to see if anybody has any wise words for this limbo time I find myself in?

I feel like I have a huge ticking bomb inside me.

thanks

  • Oh dear! Well you made the effort and the cake will surely not go to waste! 

  • Hi,i was diagnosed with ovarian cancer last year,the waiting is horrendous,after operation that was extensive  followed by 6 rounds of chemo im on the mend,stay strong,i was ringing every day to get my scan results,i do believe my persistance saved my life

    Best of luck

  • Thank you..if you have time/ inclination I am always interested to hear more about people's experiences.

    So, yesterday morning my temperature went to the threshold level that I have to report to the hospital. They brought me in to check me over and I am now an inpatient for the weekend. My neutrophil level is 0.15 and they aren't taking any chances. I am on I.V antibiotics and all sorts of stuff. I wasn't expecting it but I understand these things are not out of the ordinary. 

    I'm gutted I'm not home with my son on the weekend but nothing I can do unfortunately! 

  • Hi

    Hopefully you will only be in for the weekend,but best to get any issues sorted

    Good luckx

  • Afternoon Peanut,

    so glad you got prompt attention to address any issues.

    ive been through a similar situation whereby I was  called in for an infusion because of my kidney function..  this was last year, and did the trick

    i was in for chemotherapy treatment Yesterday afternoon, all went smoothly and as always great attention from the oncology team, even putting me in a side room, enabling some sleep as I had not slept well the night before.

    i now await any side  effects to develop , as they do usually. 
    so onwards and upwards, I’m sure you are missing that time with your boy and husband.  But you will make up for it. 
    take good care of yourself, try and rest as much as possible,

    Regards Rose-w

  • Thank you for the supportive messages. I am still in hospital but being looked after so well. I have no complaints. They are very thorough. I have had the luxury of a side room with en-suite as I am very vulnerable.

    The good news is they injected my tummy yesterday with something to boost my neutrophil count and today I am back up over 1 so that is a relief for sure. I think they will keep me on the I.V antibiotics a bit longer then switch me to oral ones before sending me home hopefully on Monday.

    This 1st cycle has been a learning curve as to how my body responded to the chemo. A positive is that I have not needed another ascitic fluid drain since before chemo. I also have lost naturally a lot of fluid that my body was holding onto...between 10-14lbs of it in about a week! I feel so much lighter without it and realise what strain cancer is putting on every part of me.

    Today I have noticed some hair shedding so that is my next side effect to contend with it seems. I hope to persevere with the cold-cap going forward.

    All the best x

  • Glad to hear you a feeling ok,with regards to hair loss,i shedded loads but never lost it,i just had it cut shorter,i didnt use cold cap as i was afraid it was too much to deal with aswell as chemo

    Wishing you all the very best

  • Morning Peanut,

    hope you are feeling improved and ready to go home soon.

    i too have contended with hair thinning , i even acquired two wigs, I haven’t worn one of them so far. I use Oilatum shampoo which helps my itchy scalp. I trim the front and sides of my hair, husband trims back. I am reluctant to have it properly cut at hairdressers. I manage to keep it looking acceptable considering how much thinner it is now.   So hope you are able to make the right decision for yourself.  I too couldn’t cope with cold cap. 

    also pleased that your ascites has subsided, again, been there , such relief when it was drained. 
    i wish you every success for a good journey. 
    regards Rose-w

  • Thank you for the messages.

    I have had blood tests every day since admission and I have gone from a neutrophil count of 0.15 on Thursday to 6.4 today so I'm no longer neutropenic thankfully!

    I'm still getting I.V antibiotics and that should get reviewed today, maybe switched to oral antibiotics. 

    I have had a few days enforced rest which was probably what I needed. I am not the kind of person that knows how to stop doing things. So, if I was at home I would still be doing chores between rests because I struggle to switch off. I'm not good at doing nothing and my sense of calm comes from productivity and being useful. I am going to have to try harder at resting in future cycles!

    Regarding hair....I will have to see what happens to mine. I got a wig from the Macmillan support centre and I think it looks really natural and will be my go to. I tend to wear little soft caps on it between washes as it looks a mess with less frequent washing and my roots showing! It all sounds a bit vain but I believe hair is very important, especially to females, as an outward symbol of our identity and how we see ourselves.

    It is nice to read these messages when I'm stuck in hospital with limited interaction, so thank you!

  • Hi peanut

    I totally get hair is an issues for ladies it forms part of who we are and to the outside world no one knows our struggles,i know with chemo hair dye is not and option,but for me i choose to try plant extract colour to keep some normailty,it was amazing and gave me confidence to go out and about looking ok

    Hope this helpsxx