Lobular breast cancer and surgery cancelled

Hi I was diagnosed with grade 2 lobular breast cancer on the 6th may after being recalled from a routine mammogram and after having biopsies done . I also have lymph node involvement under my arm I had a ct scan and an mri scan and surgery was arranged for last Wednesday I was due to sign consent on the Monday we had been to Tenby for the weekend and on way back in the car to the hospital I found a small lump in my neck I told the consultant and he did an ultrasound scan and then said I need a pet scan he explained this may now need to be treated differently with chemotherapy and then possible surgery .Ive had the pet scan last week I know results are back oncology have just phoned me and given me an appointment for Thursday I’m besides myself with worry and full of anxiety and scared that this has gone to my brain as it is the only place that was not checked in a ct scan and was told that there was no spread anywhere I feel in no man’s land at the moment my dad had cancer and had brain mets and he died within four months I will phone my breast care nurse Tom and chat to her it’s just I know the results are available and wish I could be told sooner 

  • Hi lizzy69.  I am so sorry to hear about your diagnosis.  Cancer is scary no matter what grade or stage.  I had stage 3, grade 2 lobular breast cancer with node involvement too.  I had lumpectomy first, then chemo and then radio therapy and then the tamoxifen (as I was 47).  I think the stage you are at , in the waiting room, is the scariest.  I found that once I had my treatment plan in place, it was easier to manage.  I also worry that I have brain mets as they have scanned everywhere else except my brain.  I am trusting if they think it had spread to my brain they would scan it.  I guess we have to trust them as the experts.  I know waiting is the worst and no matter what anyone tells you about keeping busy, the cancer is never away from your thoughts.  My mom had breast cancer and my sister died of cancer at 26 so know how scary it is.  I just wanted to say you are not alone and myself and everyone on here, on here for you.  Sending you big hugs.  Good luck with your appointment on Thursday please take someone with you if you can.  Let us know how you get on.

    Lee x

  • Aw thanks for the reply you have been through a lot as well it’s just a constant journey of anxiety and waiting I was doing well as had the same plan as you surgery chemo and radio but now things changed cons did say it could be chemo then surgery I’m just so worried I’m trying to be busy well at the moment I’m just lying in bed thinking the worst I will get up soon going to see my friend soon and I’m having the grandkids for a bit later thanks for the reply yes I guess we have to trust them as well just wish I could go Tom to talk to them yes I will let you know 

    thanks 

    xxxx