Diagnosed three weeks ago and on a slow-moving “Cancer Patient” Conveyor Belt ….

Hello

It’s taken a year since my GP visit and “2 Week Wait” appointment to get a diagnosis -  Two Ulta Sound Scans, two hysteroscopies (one so traumatic that I had nightmares for eight months afterwards), and a CT scan revealed grade 3 serous endometrial carcinoma. At MDT review it was then thought that the origin may be ovarian, and it has spread to the surface of my bowel. My diagnostic journey has been poor at best, incompetent at worst. I still don’t know my treatment plan or stage, but believe it could be chemotherapy followed by radical hysterectomy, omentum removal  and “bowel peeling”. I’m feeling angry, apprehensive and annoyed and currently cannot see beyond a hideous year of feeling ill. My symptoms were a tiny amount of spotting - no other symptoms, pain or tiredness. I’m 68 this month and generally in good health otherwise. I have an appointment with a consultant today so hopefully will have clarity at least. Onwards and upwards and at least it’s a sunny day! Thanks for reading my introductory rant :-) I wish everyone a positive day xx

  • Hi Hendj,

    A very warm welcome to our forum.

    I am so sorry to learn of your experience so far. Did you get any further clarification at your appointment with your consultant today? I do hope so!

    Please keep in touch and let us know how you got on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Offline in reply to Jolamine

    Thank you. Alas! No clarity provided today. The ovarian cancer marker tests were normal. Apparently, it’s a “very unusual” cancer and it’s taking time to determine its origin. Another two weeks wait now while the original biopsy is examined further. I feel perfectly well. I know my liver, lungs, pancreas, lymph nodes, kidneys and ovaries are clear. Bowel cancer blood results are due back soon (my regular bowel screening was clear a few months ago). I’m no wiser today though! 

  • Offline in reply to Hendj

    Hi Hengj,

    I am so sorry to hear this. I had a very rare breast cancer when I was first diagnosed,15 years ago and know just how frustrating it was waiting for all of the additional tests and then their results. It's good to hear of the positives too - at least you know that a number of your organs are clear! I hope that your blood results come back soon and shed more light on the situation.

    Please keep in touch and let us know when you find out more.

    Kind regards,

    Jolamine xx

  • Offline in reply to Jolamine

    Thank you

    i hope you made a full recovery xx