First steps on my journey

Hello everyone,

I'm new here. Waiting on my results Friday following a PET scan and MRI of the brain. Hope they find I still have one, lol. Anxiety is a poor bedfellow, nighttime scrolling means my peace of mind is shot to pieces. Not yet 59, 2cm lesion on my right lung, the radiologist doesn't like the look of the spiky nodule. Got lucky in getting an appointment in a good cancer centre, but still very nervous about my upcoming appointment. What to tell the kids (how much info)? Hubby never around due to his work, I know this is a journey I will be travelling alone. Any advice would be welcome, even just a friendly hello. It's hard not to feel daunted. So much information out there (drug trials, innovative protocols, etc). So glad to have discovered this forum to connect with fellow-travellers. All the best to you all ...

  • Hello britething

    Sending you lots of love. I'm travelling again with a second diagnosis of breast cancer within 11 yrs...can I do all the chemo stuff again,  you bet I can, Im not going anywhere yet. Stay positive,  even though I no it's dam hard too, and stop scrolling.!!..xxx

  • Thanking you for your kind words. And best of luck on your second ride on this crazy rollercoaster of a journey.

  • Hi Britething,  yes it is a horrible journey to be on and it can feel like a lonely journey too.  I bet you are nervous for your appointment tomorrow, I am praying that you get good news.  I am on this journey for a second time too.  This time it is not curable but treatable.  I find that this forum and the Macmillan forum help me tremendously.  Everyone is on the same journey at different stages.  Good luck for tomorrow.  Sending you hugs x

  • Thank you so much. I’ll be back with news hopefully tomorrow evening. All the best to you too.

  • Hi Britething,

    A very warm welcome to our forum.

     I am sorry to hear that you are travelling this journey alone, but rest assured that there are plenty of us here to keep you company and offer support and the benefit of our experience where possible. What you tell the kids depends upon what age they are. Macmillan produce a booklet entitled "Talking to children and teenagers when an adult has cancer" - visit be.macmillan.org.uk or call 0808 808 00 00. You might find this helpful in tackling this problem.

    Waiting for results is one of the hardest parts of our cancer journey. I agree with Carol. Steer clear of consulting "Dr Google". Much of the information is poorly researched, out of date and nearly all is aimed at the more spectacular cases. This won't give you any answers and will only serve to  scare you further.

    I am glad to hear that you'll soon know the outcome, as the unknown is a very uncomfortable place to be. I shall be thinking of you tomorrow and I hope that it goes well. Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hello friend, I'm  sending you very best,positive thoughts. I too am new here. Following  a routine  op,I got a phone call out of the blue to said I had cancer  of the gallbladder.   Your description  of a path to be taken on your own really resonates  with me as that is exactly  how I feel. Be kind to yourself.