Myeloma

  • I have myeloma and a stem cell transplant in January 2024. I am having ongoing chemotherapy.  I have two children that do not contact me  a wife who.herself is not well and the only family I have is a neice with cancer herself and no real friends. I get so down in the dumps and do my best to be positive .I suppose being lonely also. I am not one to share feelings as I keep myself to myself for the last 40 years.
Parents
  • Hi Grah, 

    A very warm welcome to Cancer Chat and thank you for coming here and sharing your story of living with myeloma. I hope that the chemotherapy treatment is going well and that you are not suffering from too many side effects. I am so sorry that you have been so isolated and that your children have not contacted you and your wife is not very well at the moment as well as your niece who has cancer too. I can imagine the loneliness must be hard to bear sometimes and that it can be difficult to remain positive at times.

    This is a time when you might need support from loved ones and it can be a real challenge to face all this alone. I just wanted you to know that the forum is here for you anytime you need to reach out to someone who understands what you are going through and I hope that you will soon be hearing from others here who have also been diagnosed with myeloma. I thought I would mention for example this recent myeloma thread by  which you are welcome to respond to if you wish to do so. 

    We would love for you to feel less lonely through the power of this online forum and I hope that Cancer Chat will help you connect with others who have been affected by myeloma. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Dear Suzie

    Many thanks for the note and hope that you are bearing up to the preparation of stem cell transplant.

    I think mine was straight forward and was discharged after 3 weeks in hospital. The plus side was that it was over and confess I managed to sleep a lot.on the negative side did feel sick at times and had no appetite but that soon passed. Lost all body hair but that quickly grew back.

    Once home did need effort to get going but now after nearly two years I am able to do most things in moderation.

    It does help to be positive, hard sometimes, but you and only you can help the recovery process.

    If had the choice to undertake the stem cell transplant then yes would do it again as the process does not go on fo ever. By the sound of it you do have family which is the most important part of the healing and to support you in the lows- when I get lows I just get out in the fresh air and that helps to a point.

    The chemo after is straight forward and give 100% to again aid recovery..

    I wish you well and I am sure that all will be OK.

    Kindest Regards

    Graham

Reply
  • Dear Suzie

    Many thanks for the note and hope that you are bearing up to the preparation of stem cell transplant.

    I think mine was straight forward and was discharged after 3 weeks in hospital. The plus side was that it was over and confess I managed to sleep a lot.on the negative side did feel sick at times and had no appetite but that soon passed. Lost all body hair but that quickly grew back.

    Once home did need effort to get going but now after nearly two years I am able to do most things in moderation.

    It does help to be positive, hard sometimes, but you and only you can help the recovery process.

    If had the choice to undertake the stem cell transplant then yes would do it again as the process does not go on fo ever. By the sound of it you do have family which is the most important part of the healing and to support you in the lows- when I get lows I just get out in the fresh air and that helps to a point.

    The chemo after is straight forward and give 100% to again aid recovery..

    I wish you well and I am sure that all will be OK.

    Kindest Regards

    Graham

Children