BRAF mutation with colorectal cancer - has anyone else had this?

Hi. 

Has anyone been been advised they have the BRAF mutation with colorectal cancer. I've got bowel cancer alongside liver metastasis. Not a lot of info out there. Looking to chat with someone of similar experience. Avoiding googled obviously as so scary and my oncologist just told me it makes the cancer more aggressive. 

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  • Hi there

    It’s good to speak to someone in a similar position, it’s all very scary, especially google, which we all sometimes do.

    My partner also has just found out he has the BRAF mutation with his bowel cancer. We’ve been told the same that it makes the cancer mutate and grow faster, which is scary, He has got lung metastasis also, so far he has been given a higher dose of his chemotherapy drug to try and stay ahead of the cancer and we are hoping that this will improve, but we won’t know until he has a scan to see if things have improved or not he has had two rounds of chemo so far, and was diagnosed in February this year, he has an appointment with his oncologist beginning of may so we are hoping to find out more then.

  • Good luck. I'm just starting mine, it is really scary when they first tell you. I'm getting additional antibody treatment and then immunotherapy in pill form on top of my chemotherapy,  the antibody attacks the BRAF and the immunotherapy helps the immunothe system,  it might be worth discussing this with hour oncologist as I believe they are available on the NHS. Good luck xx sending love & healing 

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  • Good luck. I'm just starting mine, it is really scary when they first tell you. I'm getting additional antibody treatment and then immunotherapy in pill form on top of my chemotherapy,  the antibody attacks the BRAF and the immunotherapy helps the immunothe system,  it might be worth discussing this with hour oncologist as I believe they are available on the NHS. Good luck xx sending love & healing 

Children