Prostrate surgery waiting times?

Hi 

My partner has been diagnosed with a Gleason 8 prostrate cancer, he has had bone scans and it is contained. We feel lucky it is, but I’m worried sick as the surgery he has been offered seems to be “weeks” away according to the CNS. I was wondering how long people waited from the diagnosis to surgery? I’m based in England and I appreciate all areas may have different time lines but any help or advice or reassurance would be great. Thank you for any help 

Parents
  • Hi sorry  about your *** news I live in south east England I was diagnosed  early dec prostate  cancer had a prostatectomy  21st January  think they give you a bit time to decide  your best course of treatment that suits you I was offered  it a week earlier  at another  hospital  but was happy to wait as I liked the urology team at my local hospital good luck 

  • Hi, thank you so much for sharing and I really appreciate you spending the time to reply. I know all areas of the country have different waiting times but it’s nice to hear how long people have waited. Did you have many side effects after the surgery? I wish you well in your recovery and thank you again 

  • Hi  4 weeks on my they warned me about inconvenience  but I wasn't bad they took the catheter  out 2 weeks ago  I never leaked much if I sneezed  or cough I felt a little bit  I've been doing pelvic exercises  and for last 2 days I've been fine no leaking  so fingers crossed  as for ED nothing yet but it's still very early  I'm still not sure how much of the nerves they took away I should find out in 5 weeks if it had come outside prostate  1 thing I will say take laxatives  as soon as your home it will save you a lot pain as I found out if you need any more questions  answering feel free to ask

Reply
  • Hi  4 weeks on my they warned me about inconvenience  but I wasn't bad they took the catheter  out 2 weeks ago  I never leaked much if I sneezed  or cough I felt a little bit  I've been doing pelvic exercises  and for last 2 days I've been fine no leaking  so fingers crossed  as for ED nothing yet but it's still very early  I'm still not sure how much of the nerves they took away I should find out in 5 weeks if it had come outside prostate  1 thing I will say take laxatives  as soon as your home it will save you a lot pain as I found out if you need any more questions  answering feel free to ask

Children
  • Thank you so much for all the information and sharing with me. I hope you get a speedy recovery and good results in 5 weeks! Thank for sharing I do appreciate like I said and thanks for the tip on laxatives

  • Your more then welcome  really hope all goes well for you both  

  • That’s good about the catheter as I know that can be an issue. Sounds like it’s not been too bad and thanks for the tip on laxatives. I hope all goes well with you and the results good. Thanks again and may have some questions in the future

  • Just hope it helps think in my eyes having a very supportive  wife and great friends and family  makes a big difference  you need to no your not alone 

  • Good morning how are you doing? Can I ask how long you waited for the surgery after seeing the surgeon? We have now seen my partners and we have to wait 6-8 weeks! He has a Gleason 8 and it is aggressive, although at the moment contained! How do you use the right to choose option? I’m really worried he has to wait so long but apparently the consultant seems to think that’s ok. I live in the midlands. Thank you again for your help and support 

  • Morning  was diagnosed  early December  was given options went back to see consultant  on 18th Dec  to confirm  what I wanted  dhad a phone call from secretary  couple days later my opp was 21st January  I could of had it done week before at another  hospital  that might be an option  for you  I don't no if different  areas are the same I'm in kent South East 

  • Morning  I'm doing OK thanks  I was diagnosed  1st week December  went back to see consultant  on 18th I then was phoned couple days later and offered 21st January  or the 14th in another  hospital  that might be an option  for you  I don't no if different  areas vary in South East in kent 

  • I think everyone has a slightly different journey with their cancer diagnosis and treatment.  I had a PSA test in mid-Dec, which was followed up by a second PSA test then an MRI scan and then a biopsy.

    All of the above took me through to mid-Feb, where I was given my gleason score.

    What's happened since is a number of different appointments to talk to different teams, ie surgeon (for prostatectomy), oncologist (for brachytherapy and external beam radiation), mental well being support (Holistic Nurses), Maggies etc..., and a couple of other appts that I can't remember.  I'm having 1 or 2 appts a week at the moment and will make a decision soon.

    I couldn't fault the whole process, the attention to detail, the care given and the options.  I've had surgeons call me back in response to my various emails for additional information, as I've not only been curious about the procedures, but also the side effects, the chances of the side effects hitting me now and in the future, recovery times and after procedure care/support.  It's not an easy decision to make, but I have been told that with prostate cancer (3+4), I've got time and don't need to rush.  Also, we're off to Porto at the end of March, and my wife would kill me if we had to cancel another holiday because of my medical conditions!!

    The only advice I'd give is to do plenty of research, ask lots of questions and don't force yourself to rush things - do things in your own time at a pace that suits you, whatever that might be.