Bladder Cancer

Hello All,

I’m Chris have had Bladder Cancer since 2012, happy to discuss with anyone new to this cancer or anyone who just needs to talk and for someone to listen.

We all have good and bad days, so none of you should suffer or worry alone, we are all here to help.

Parents
  • Good morning  Chris, 

    i am attending my hospital tomorrow for a cystscopy. Blood in urine for a few weeks visible and non.. so now the doctor has referred me .. this also happened at new year but when no infection was found dr took no further action.. but was seen by gynaecologists for endometrial biopsy, renal ct scan and tvs ultrasound all came back clear. That was different symptoms.. so worried about tomorrow.. 

Reply
  • Good morning  Chris, 

    i am attending my hospital tomorrow for a cystscopy. Blood in urine for a few weeks visible and non.. so now the doctor has referred me .. this also happened at new year but when no infection was found dr took no further action.. but was seen by gynaecologists for endometrial biopsy, renal ct scan and tvs ultrasound all came back clear. That was different symptoms.. so worried about tomorrow.. 

Children
  • Good morning,

    Sorry to hear that you have a blood in your urine, you have a right to be nervous, I still get nervous every time I go to have one and I have well over 30 cystoscopy now.

    I am making the assumption you are going for a flexi-cystoscopy and not a rigid one, as rigid ones are done under general anesthetic So the procedure itself takes about 5 minutes, they will ask you to get naked from the waste down and you wear a gown, they then give you some local anesthetic to numb your urethra and then insert the camera to see what is going on, if they see anything they will take photos,but they should tell you if they do or don't find anything.They also normally have a screen for you to see your bladder which I still find fascinating.

    You probably will experience burning when you pee after the procedure.

    I would expect the renal CT scan to have covered your bladder as well, so take some reassurance from that.

    I know you are worried and it is really normal to feel that way, and I really can't say anything to stop you worrying, but please let me know how it goes tomorrow, I always happy to talk to you about my experiences if necessary.

  • Thank you for your reply its much appreciated.. my doctor sent this through to see the urologist as a routine appointment she dosent see the urgency like i do.. hospital telephoned other day and said they r trying to fill appointments so that was quick..just so worried with blood in urine a few times now but really no other symptoms.. doctor says maybe hormonal.. 

    thanks

  • Also meant to add it's a flexi. Good to know how they go about the procedure as had no clue.

  • So the blood in the urine could have many causes, for example a friend of my had bleeding when he peed but it was determined it was due to his cycling(he is an avid cyclist) that this was the cause of the bleeding, if you are on certain medication then that can also cause it. I have the same experience with my GP, he didn't seem to take it seriously until I pushed to see a urologist, fingers crossed it goes well tomorrow, and please let me know if you need to talk and let me know how you get on, you can always send me a private message.

  • Good afternoon, i was at the hospital for the camera this morning pleased to say all was ok.. very quick procedure.. thanks for your help 

  • Amazing news, congratulations.

  • Hi Chris, hope all is well.. I recently was sent for a ct urogram. Got results yesterday.. briefly over the phone . I have an underfilling bladder and also bladder walls are slightly thickened.. urologist says just to monitor if any more bleeding contact my doctor.. i take it as cystscopy was clear also this is why they are just goin to leave it at present? Thanks

  • Hey Doglover3636,

    How are you? 

    Yes if your cystoscopy is clear then they will just monitor you. maybe yearly check ups to keep an eye on your, which isn't a bad thing.

    But I am happy for you that it came back all clear.