New member Diagnosed with Myelofibrosis

Hello

just discovered the site and I was diagnosed with Myelofibrosis back in October

i am Transfusion dependent and taking chemo medication

Still in shock and denial but i am receiving amazing treatment in Cornwall

currently looking into the option of a stem cell transplant but there is currently no cure

learned a lot about blood cancers and I’m getting support from work and friends but it’s still hard sleeping at night with worry and fears but I guess it’s normal 

Thank you

Iain

  • Hi Iain and a big welcome to Cancer Chat, 

    Thank you for sharing your story of your myelofibrosis diagnosis. I can imagine this was a bit of a shock for you but I am glad you are receiving such good treatment in beautiful Cornwall. I hope that the treatment will be successful and that they will be able to explore all possible options that are available to you - our website has detailed information on treatment for myelofibrosis and it might help to read the information we have about coping with myelofibrosis on our website.

    I am glad you are getting so much support from work and friends - it is so important when going through something like this. I am sorry to hear that you are having trouble sleeping at night due to the worry - it's totally understandable in your situation but if you see that you are really struggling to sleep, talk to your doctor about it and explain that you are feeling worried and it's making it very hard for you to sleep at night. I am sure your GP will be able to help so that you sleep better again and having good sleep is really important so you can function through the day. 

    I also wanted to let you know about other recent threads on the forum from members who have been affected by myelofibrosis and I will mention for example  's thread on prefibrotic myelofibrosis or  who posted this thread a few months ago on myelofibrosis - feel free to respond to these if you wish and share your experience. We also had someone named George with the username  who posted this thread about his myelofibrosis diagnosis. These are just a few examples and I hope that you will be able to connect with others here on Cancer Chat who have had a similar diagnosis. 

    Best of luck for your treatment - you seem to be in good hands and I hope it will all go well for you! 

    Lucie, Cancer Chat Moderator