I have a friend whose husband was diagnosed with this approx 10 years ago, she said that because it is quite a rare type of blood cancer, they had alot of difficulty finding information on it.
She said the website: mpnvoice.org.uk was a good source of information with regard the condition.
Her husband was on medication for a number of years and managed to get on a clinical trial, which worked well. Then approx 2 years he had a stem cell transplant, which has worked and 2 years on he is still clear from it. Yes, there is a chance that it may come back, but at the moment it is looking very positive!
