Multiple Myeloma

Hi

My name is Phil,

I was diagnosed with multiple myeloma in 2016 and had bone marrow transplant 2017,

This is not a curable disease unfortunately, they told me the average life expectancy was on average 5 years,so iam doing ok, however I wish I could get on with my life instead of thinking everyday and every night about this ticking time bomb that I have, iam sorry to say it has taken over my life and changed my life.

From being a people person who worked with the public on daily basis,to seeing no-one, friends that I thought were friends have disappeared, I understand people don't know how to handle it or how to talk, especially being a man or men, 

So from seeing lots of people to pretty much no-one is hard.

  • Welcome to Cancer Chat Phil, although I'm sorry to hear about your diagnosis and how this has impacted on your life.

    I'm not sure from your post if you have spoken to your GP or medical team about this but if not, do reach out to them as they will do all that they can to help. There is also a cancer charity called Maggie's that provides free expert care and support, including access to cancer support specialists and psychologists, in centres across the UK and online. If you have a centre near you, you are free to drop in any time and meet other people who are also on this journey. A lot of our members have found the services they offer to be really helpful so do have a look at their website when you can.

    Speaking of our members, I hope it helps to know that so many of them will know what you're going through Phil, so you are not alone, and hopefully it won't be long until some of them stop by to offer their support and advice. 

    You're also welcome to talk to our team of friendly and helpful cancer nurses on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very easy to talk to and will do all that they can to support you as well.

    Kind regards,

    Steph, Cancer Chat Moderator