I may have stage 4 prostate cancer & my GP missed it

In 58 yrs old, live in South London with a teenage family. I'm semi-retired & pretty fit & healthy. I got hip pain in Spring '23 which i thought was from jogging but asked my GP to check me for prostate cancer, considering the family history - my father was found with stage 4 prostate cancer at 58yr & died 2 yrs later, & my mother died of melanoma (& a broken heart) 4 yrs after at 64yrs. It was an awful time. Anyway, I was given a manual prostate examination (finger) & then sent for bloods & was then contacted a week later to say everything was fine. I was relieved and the pain subsided after a while, so i carried on as normal but by summer '24 it surfaced again. I thought it might be sciatica as i also had nerve pain & tingling down my left leg but closer to Xmas '24 it changed & become a strong dull hip pain (uncomfortable to sit for long). In the last 3 weeks I've started to experience tingling pain in my ribs front & back and some spine pain. As part of completing some life insurance forms I asked my GP to email me my medical records. Looking back at '23 i saw notes saying my 'prostate gland enlarged consistent for age' & my PSA level was 3.38. I've spoken to an ex-doctor i know who said i should definitely have been referred to a urologist in '23 with that reading & family history & he found my latest symptoms alarming. I had a fresh PSA test today & see my GP on Tuesday next week. I'm concerned that i've sleep-walked into stage 4 cancer, the same as my father and i'm terrified. I just know something is really wrong & i'm not imagining it.

The last 6 weeks have also been sobering as I found out my 2 best friends have cancer issues; one has found a melanoma & the other's wife has found breast cancer. You suddenly realise that cancer is all around you - people & families suffering & struggling, Life can be really hard. 

Calls for calm are appreciated but what i really need to know pre-GP appointment next Tuesday is, if the PSA is further raised then, what's the fastest way to get myself under an oncologist/urologist & get MRI & PET scans. I can pay privately for these (as i suspect the NHS wait will be 6wks+) but i'm unsure of cost & speed of the private route (& cost variances). Also if I pay privately to get MRI & PET scan& get a prognosis can i then drop back into the NHS system for treatment & what are likely wait times in London area for chemo/radio etc...?

Also is there any particularly good cancer hospitals or consultants in UK working with prostate cancer that I should contact?  Any advise warmly received & big hugs to all those out there struggling tonight.

  • Hello

    I'm sorry to hear what you're going through.

    I wonder if it might be an idea for you to repost this in e.g. ask the Nurses as they're more likely to see it there? The Macmillan website will probably have a relevant group as well.

    Good luck to you.

    Helen