Pros and Cons of Cold Cap

I was diagnosed with BC in October, had mastectomy end of October and a second op on 9th Dec for auxiliary node clearance. I've to start chemo in the new year. Still to meet my oncologist but just wondering what's people's experience of opting for using the cold cap and experience of others who didn't. I do know that it adds extra hours onto chemo treatment time. Also if not used and have hair loss what was it like when your hair grow back? Ie was it same texture/colour and how long till it grew back?  I do have a voucher from NHS to get a wig which they recommend even if I opt for the cold cap. Just looking for real honest experiences so I can weigh up my options. Thanks in advance to any replies x

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  • Hi Mumkat  I made the decision not to cold cap during chemo. I started losing my hair after the second cycle and must admit I did have a little cry. However, I did get a variety of lovely hats and wore a wig if socialising. After 3 cycles of EC, I went on to 4 cycles of docetaxel. My hair actually started growing back before I had my last cycle of docetaxel. I did lose eyelashes and eyebrows towards the end of my treatment, but after a few weeks they started growing back. To begin with my hair appeared more grey than previously, but several months on has got darker. Apart from being a bit fuzzy at the front, it is straight, as it was before. I wish you well on your journey moving forward. Xx

  • Hi pipin24, just a wee update. I saw my oncologist and i too have to have EC then docetaxel same as you got. I'm getti g 4 sessions of each chemo. I'm also to get iv zometa (6monthly for 3yrs). Hopefully I will be starting my chemo next week x

  • I'm on zoledronic acid 6 monthly for 3 years, which is the same as zometa as far as I know. I'm due second one in february. Hope all goes well with your chemo next week. I actually found chemo OK and had minimal side effects. I asked for a port, which was fitted after 2nd cycle. First two were through canula, while I waited to have appointment for port. Pleased I had it though, as after only 2 cycles through canula, had aching in my arm for several weeks. Have they offered you a port or a picc line at all?

  • No they haven't mentioned that but I'm up at hospital on Monday for a wee pre visit to the chemo ward so will ask the question. Coukd I ask what a port is, I'm assuming is a more permanent line for getting the chemo? X

  • A port is a device that is fitted under skin in chest and a tube goes into vein in the neck. A bit more invasive to fit than a picc line, but less maintenance. A picc line has to be flushed weekly and more prone to infection. All blood tests can be done through the port as well as chemo and any infusions. You can also swim with a port, but can't with a picc line. 

  • Can't thank you enough for the info, so much to take in with all aspects of the treatment. Did you have any dental issues getting the zolendric acid? I'm getting my dental check up tomorrow as well so I can be ok'd to start  it. I got prescribed the high fluoride toothpaste too, I'm assuming I will need to use that unti after all treatment is finish? X

  • So far I haven't had any issues with my teeth, but have a dentist appointment at the end of the month, so will see what he says. I've only had one infusion so far, so don't know if teeth could decline after time, will let you know how it goes. Xx

  • Got my first EC on Thursday. Had terrible heartburn last night feel a bit blah and tired today. First chemo went OK on day itself just very tired afterwards and bit of headache but put some of that down to not getting much sleep  the night before start of my treatment. Had DN in to give me the tummy jags (filgrastram) that I get for 7 days!  Didn't know about that till couple of days before my chemo started! 

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  • Got my first EC on Thursday. Had terrible heartburn last night feel a bit blah and tired today. First chemo went OK on day itself just very tired afterwards and bit of headache but put some of that down to not getting much sleep  the night before start of my treatment. Had DN in to give me the tummy jags (filgrastram) that I get for 7 days!  Didn't know about that till couple of days before my chemo started! 

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