Pros and Cons of Cold Cap

I was diagnosed with BC in October, had mastectomy end of October and a second op on 9th Dec for auxiliary node clearance. I've to start chemo in the new year. Still to meet my oncologist but just wondering what's people's experience of opting for using the cold cap and experience of others who didn't. I do know that it adds extra hours onto chemo treatment time. Also if not used and have hair loss what was it like when your hair grow back? Ie was it same texture/colour and how long till it grew back?  I do have a voucher from NHS to get a wig which they recommend even if I opt for the cold cap. Just looking for real honest experiences so I can weigh up my options. Thanks in advance to any replies x

  • Hi pipin24, just a wee update. I saw my oncologist and i too have to have EC then docetaxel same as you got. I'm getti g 4 sessions of each chemo. I'm also to get iv zometa (6monthly for 3yrs). Hopefully I will be starting my chemo next week x

  • I'm on zoledronic acid 6 monthly for 3 years, which is the same as zometa as far as I know. I'm due second one in february. Hope all goes well with your chemo next week. I actually found chemo OK and had minimal side effects. I asked for a port, which was fitted after 2nd cycle. First two were through canula, while I waited to have appointment for port. Pleased I had it though, as after only 2 cycles through canula, had aching in my arm for several weeks. Have they offered you a port or a picc line at all?

  • No they haven't mentioned that but I'm up at hospital on Monday for a wee pre visit to the chemo ward so will ask the question. Coukd I ask what a port is, I'm assuming is a more permanent line for getting the chemo? X

  • A port is a device that is fitted under skin in chest and a tube goes into vein in the neck. A bit more invasive to fit than a picc line, but less maintenance. A picc line has to be flushed weekly and more prone to infection. All blood tests can be done through the port as well as chemo and any infusions. You can also swim with a port, but can't with a picc line. 

  • Can't thank you enough for the info, so much to take in with all aspects of the treatment. Did you have any dental issues getting the zolendric acid? I'm getting my dental check up tomorrow as well so I can be ok'd to start  it. I got prescribed the high fluoride toothpaste too, I'm assuming I will need to use that unti after all treatment is finish? X

  • So far I haven't had any issues with my teeth, but have a dentist appointment at the end of the month, so will see what he says. I've only had one infusion so far, so don't know if teeth could decline after time, will let you know how it goes. Xx