Hi Subiedoo,

It sounds like you have been through a lot with all this and I can understand what you say about it being entangled, and that you are still dealing with a lot of things.

I see that your appointment was yesterday, so I hope that it went OK.

Do remember we are always here whenever you may need it, even if it's just to write things down. I know that it can be difficult when those closest to you are worrying - sometimes it is helpful to talk to others who you may not know so well, but who can understand, such as those on this forum.

If ever you feel you'd like to talk things through regarding what you went through with your mum, it might be worth having a look at Cruse. They have lots of resources and a helpline, and also links to local support options.

I hope that it's not long for you to wait to find out more following your appointment, and in the meantime I hope that the forum can be helpful for you and that you get some more replies soon. If not, you can also search for other discussions (using the bar at the top of the page) and people to connect with.

Wishing you all the best,

Ben
Cancer Chat Moderator

Thank you so much Ben.

I realise reading my message back that I just blurted all the sadness out which happens now & again. Some days I feel at peace with it all.

Cruse is a good shout, I did have 2 lots of private counselling but that was before I was diagnosed with dysplasia.

I read another persons post, seabreeze I think, and they made me feel more determined to be as brave as possible yesterday, thank you whoever you are ️

The biopsy went well, I took paracetamol and ibuprofen before my procedure, the Dr put in 3 injections, although I felt those I just counted and winced but felt nothing else, it was so much better than last time and I am so grateful for that.

For anyone else going for a biopsy that maybe anxious, make sure to let the team know beforehand, I did. They booked me in at 9am so I didn’t have to wait around and they gave me more injections, I didn’t have 3 last time, they talked to me in a calming manner throughout and I felt really cared for.

I have a 2-3 week wait for my results.

My husband and I are hoping for the best but I think we are both accepting of whatever comes.  

Cancer Research has always been my husband’s and I monthly charity donation but I never thought I would be helping myself.

Thank you for the support, it means so much.

Hello Subiedoo,

I am sorry to hear what you have been through. 

How did your biopsy results go? Is there a reason why they requested for another one? 

Correct me if I am wrong, from reading your past threads, it seems as if they removed the cancerous tissue along with some healthy margins. Hopefully it’ll be all clear for you. 

Sorry just to add — I have been diagnosed with severe dysplasia / early invasive SCC and will be having surgery early February to remove it along with some healthy margins too.

Hi Makkie,

Thank you for your reply and positivity.

Yes I was informed my tongue surgery removed the dysplasia with clear margins back in 2022 but during my October 24 check up the consultant saw an area on my tongue that looked red and it was/is sore.

He thought it best to biopsy that section. I had the biopsy on 4th December. I was scheduled to get my biopsy results on the 17th December but that appointment was cancelled because my results hadn’t come back.

My results appointment is 28th January, this Tuesday, which has taken some time to get to but I have checked and they do have my results back now.

I am sorry to hear that you have dysplasia too, what surgery are you having in February?

I am sure you will have a great medical team working for you, they are amazingly skilled and everything crossed for you that you get a great result post op.

Happy to talk through anything if it helps leading up to surgery.

I joined the mouth cancer website group, I occasionally join in with the Monday night support group. A great bunch of people and very supportive.

Sending best wishes to you.

Hi Subiedoo,

Glad to hear your initial surgery went well. Hopefully it'll be positive news tomorrow, best of luck and please do let us know how it goes!

I think my surgery is similar (or even the same) as the one you had which is a wide local excision. I was supposed to have it on Saturday just gone but felt unwell so it had to be postponed. 

Thanks very much. I hope your appointment tomorrow goes well.

Take care

Hi,

Thanks for your good wishes, my biopsy was clear but the consultant asked me to go back in 8 weeks for a check up, then have a 12 week follow up. If all is ok reverting back to 6 monthly appointments.

My tongue is still sore so we shall see.

Re your forthcoming surgery, if you need to ask anything let me know.

sorry to hear you have been poorly.

This journey is certainly a rollercoaster ride.

All the best 

Glad to hear that your results were clear!

I've used difflam when I had a sore tongue, it helped. If you haven't tried it, I would recommend it.

Get well soon!

Thank you -- I am dreading it but my family are helping a lot.

Hi Subiedoo, can't relate to your family stuff but amazed at how well  you coped. 

In 2018 I had laser excision to tongue to remove lesion. I did not have recommended stripping of neck lymphs because the day before my diagnosis my wife was pronounced untreatable, palliative only, liver cancer. She wanted to go home, so I needed as short a recovery time as possible. One night as in patient and discharged.

5 years of irregular check ups (covid played havoc with apps system!), discharged Aug 2023.

Similar symptoms Xmas......saw specialist 2 days ago, biopsy at same time.....results awaited. The initial verdict was "doesn't seem (to be) cancer....but we've looked after you for years so best be sure..."

Been successfully through prostate cancer 2021, clear at 3 year milestone last August. 

Not sure how much longer I can ride my luck! Biopsy will tell.......

Hope you stay clear and optimistic. Good luck.

Dave.

Hi Makkie,

How are things going for you?

I know you said your surgery was early Feb so unsure if it’s taken place yet, if so rest up.

Thanks for the difflam details, I will get some of that.

Take care