Worrying about Recurrence

Hi there. I'm new to this forum and would welcome some support. I know there are lots of kind people out there. 

I had a lumpectomy in January 2023, followed by radiotherapy. Now on Exemestane. I'm mostly okay, but now I'm worried about recurrence. I've just been to the funeral of a friend who had a different cancer from me two years ago, and two months ago it spread to her liver. I think it's shocked me into thinking "that could be me." 

I don't feel able to talk about this to my nearest and dearest. As so many of us cancer patients find, my family expect me to be moving on with my life, without worrying about something I can't control. 

Wishing well to everyone in this club no one wants to join. 

  • I am so sorry to hear about the loss of your dear friend and of course this causes us to question our own mortality. My situation has a similarity with yours - lumpectomy and axillary lymph node clearance in May of this year followed by 20 sessions of radiotherapy and 7 years of hormone treatment with Letrozole. When I had possession of the complete pathology report this  freaked me out and made me think of the likelihood of a recurrence. I don't think I shall ever be able to blank out these thoughts but logic tells me that with the appropriate interventions I could be fine and that worrying about the future is utterly pointless. My husband had stomach cancer nearly six years ago and despite the odds he is still with me so there are people who survive this awful disease.

    Family members cannot understand how the trauma of having cancer invade a part of us will affect our outlook on life and,naturally, think we should be positive. It is galling when they say, "You look so well!" and dismiss any negative reply as hypochondria. Most assume that once cancer is "cut out" that's it and we should be moving on. If the fear of recurrence starts to overwhelm  perhaps a Moving On course suggested by Breast Cancer Now might help. I have considered this but so far I have resisted and tried to distract myself and take comfort in the advice of the oncologist that there are always further treatments if the worst should happen.

    Wishing you all the best. You are certainly not alone! 

  • Sorry, I meant to write "Moving Forward", not "Moving On".

  • Offline in reply to afd

    Dear afd, thank you so much for taking the time to reply. It is so helpful to hear from other people who are going / have gone through something similar. 

    I am so pleased your husband is able to get on with his life, six years after having stomach cancer.  It gives us hope for the future, doesn't it ? But sorry you've both had to go through this. I have actually been on a Moving Forward course and found it helpful, but it's a distant memory now. 

    Thank you for your support. It is so good to be reminded I am not alone. 

    Wishing you and your husband all the best.