Diagnosed ER+ PR+ HER2-

Hi All,

I recently noticed a change it the way my left breast looked, nipple inverting only slightly but noticeable to me. I for a few weeks took photos and kept checking thinking it was due to my hormones and the coil being fitted in March 2024 due to heavy bleeding and clot issues.

18th September my GP examined and couldn’t feel any lumps but I was referred to have mammogram.

2nd October Mammogram completed along with scan which found a lump 1.5cm behind the nipple and swelling in my lymph in armpit. Whilst there 2 biopsy taken for further investigation

Further appointment was confirmed for 5th November for results but I was so anxious and suffer with high bloood pressure I called and appointment brought forward to 22nd October

Feeling nervous and worried but thinking all will be ok I was told I had Breast Cancer grade 2 ER+ PR+ HER2 and surgery planned for 20th December to remove nipple and aerola with biopsy of the synoid in armpit and removal of lymph 

started Tamoxifen meds and coil removed

Now a waiting game for surgery and the treatment plan after

Feeling Lots of things and just reaching out to people that have experienced the same diagnosis 

Parents
  • I am sorry to hear you are going through this .  My diagnosis is the same, but I have 6cm at the bottom of my breast and a 1.5cm under my nipple.  I am having surgery on saturday.  I haven't been prescribed any medication since diagnosis though.  X

  • Hi Jovie

    so sorry to hear of your diagnosis I send you wishes and hope your surgery goes well and you have a good recovery. Thank you for your message i appreciate it. Keep me posted on your progress and keep positive through the process. They say to me it’s been caught early I hope you can take comfort that someone else is on this journey and you are it alone xxx

  • Saralou123.  Thank you.  I will keep you posted.  I am having 2 surgeons one for cancer side and one for reconstruction side.  They cannot save my nipples as too much  risk as I have diabetes, so keeping the scar tissue to a minimum.  Because I have larger breast ( first time I feel this is a positive) they hope to save some breast to make 2 small boobs.  Also taking 3 lymph nodes, but did say they looked ok.   I was told I will have radiotherapy afterwards and maybe chemo, but they don't know yet.  I am really nervous about the recovery.  It will definitely help having someone to message thats going through the same x

  • Hey it’s normal to feel nervous I am too feeling the same as you xxx I’ve not planned for any reconstruction but will decide later. I know you will be in good hands. I’m the same planned for radio but may need chemo xx we can chat as we in it together xx 

  • Hey Jovie,

    sending my love and thoughts for Saturday you got this xxx keep positive and strong  

    xx

  • Hi Saralou123, 

    Thank you!! Means alot.  I will let you know how it goes xx

  • Hi Saralou123, 

    Well it's all done.  I am feeling ok.  A bit sore, but expected.  They took all lower nodes as cancer was seen on pet scan.  That is the side that hurts more.  Dressing off in 10 days and seeing surgeon in a few weeks for results.   How are you feeling ? Xx

Reply
  • Hi Saralou123, 

    Well it's all done.  I am feeling ok.  A bit sore, but expected.  They took all lower nodes as cancer was seen on pet scan.  That is the side that hurts more.  Dressing off in 10 days and seeing surgeon in a few weeks for results.   How are you feeling ? Xx

Children
  • Hey so good to hear from you and that surgery went well. As expected soreness but you can rest now to recover. Make sure you do the arm excises  as this will help lower risk of the lymphoedema that’s told me xx I’ve started doing them now pre op hopefully it will help too 

    hopefully you have some pain relief too help you. Keep positive and rest up lovely

    im feeling very tired and exhausted from the tamoxifen but other than that i am carrying on the day job keeping busy right up to op

  • Definitely will help you doing the arm exercises.  I am doing them even if I need to take painkillers beforehand.  Make sure you take time to rest if you are exhausted.  Try and do some deep breathing too as this helps and is good postoperative .  

    Take care of yourself. Xx

  • Hi Saralou and Jovie,

    I'm glad to see that you have both hooked up, to get through this journey together. It's also good to know that you have had your surgery Jovie and that you are doing well. 

    I have had 2 bouts of breast cancer. I had a lumpectomy first time around and 6 lymph nodes removed. Fortunately, all nodes were clear, but this area remained tender for several months. The lumpectomy site was fine. A year after my initial surgery, I discovered another cancer in the same breast and had a double mastectomy. I had very little bother with these, once the drains were removed. The only problem was, that I was not a suitable candidate for reconstruction, so have had to remain flat. I have managed to cope with this fairly well and use an assortment of prostheses for different activities. This all happened 14 years ago and I still lead a busy and fulfilling life - I'm sure that both of you will too.

    Thinking of you both and always here for you.

    Kind regards,

    Jolamine 

  • Hi Jolamine

    thankyou for your lovely message and I hope your are ok after your diagnosis xx appreciate you sharing we don’t realise how many people go through this xxx so happy you are living and loving life too your are an inspiration xxx

  • Hi Jolamine, sorry you had to go though so much twice.  I agree with saralou123, you are a inspiration, and thank you for reaching out to us.  I really didn't think I would benefit from chatting on here but how wrong was I.  Such support is gratefully received xx

  • Hi Saralou & Jovie,

    Thank you both for your lovely replies. It is well worth sticking with the forum. You will find that people here are happy to share their experiences all along their cancer pathway. They are also happy to give you any useful tips that they can. We can all feel very isolated, angry and emotional at this stage and it is helpful to see that we are not alone in this.

    Kind regards,

    Jolamine xx

  • Hi Jolamine,

    thank you for your message and I think this site is so good for us that are going or have been through the experience we can reach out to one another 

    so good to hear that you are well after your surgery and living life to the full 

    xxx

  • Hi Saralou,

    I have found this site to be an invaluable source of information, support and advice throughout the years and I'm sure that you will find this too. It's also reassuring to hear from others, who have experienced what we are going through and really know how we feel. It is a great community and we are always here for one another.

    Regards,

    Jolamine xx



    .

  • Hi,

    just checking in to see how all is going and hope you are ok xx

    i am getting anxious now as pre op this Friday ..it’s says 2 hours so not sure what’s involved at this appointment?

    feeling nervous for op date next Friday but relieved it’s nearly here in a strange way

    My minds been going crazy with worry of spread and will they tell me when I come out of surgery ♀️ 

    hope you are ok thinking of you 

    xx

  • Hi saralou123, 

    Pre op is weigh, height, bloods, all information on you , like previous ops, medication etc.  I was given a sponge to wash with on morning of op before going to hospital.  

    Just a information letter saying what time you can eat and drink till.

    It may not be 2 hours, I think they just say allow that much time.  

    They won't give any details of surgery as you will get results in around 2 weeks .  The surgeon will come and see you just to let you know how surgery went.  

    I know it's really easy for me to say, but keep going with your deep breathing now to keep yourself relaxed.   

    Set your little area ready for when you are home.  If you have a fan, maybe put at side of bed as you may feel hot .  Keep items within reach. Make sure you have tissues, lipbalm etc. 

    You will be looked after.  You are in our thoughts and prayers

    JUST REMEMBER!

    They are getting this little *** out. 

    Lots of love Jovie xx