Sorry to hear about your diagnosis - my husband was diagnosed in February and it was a shock.
My husband had a CT scan and whilst it seemed to take ages waiting for the result they determined that Whipple surgery could be done to remove the tumour. It was a long operation, in March, but successful and he started chemo in May and it’s his last month on it this month.
We deal with the side effects on a day to day basis and he’s doing well .
i hope you get the help and support we have received from our local hospital and wish you good luck on your journey.
Hi hope you don’t mind me commenting on your post, I am petrified I have pancreatic cancer, however I had a CT scan and it didn’t show anything worrying and my amylase levels are okay. II am experiencing some awful symptoms.
Hi there - it’s so worrying when you’re experiencing horrible symptoms - and it’s easy to think the worst when it may not be?
If I were you I’d go back to my GP with a full list of my symptoms and ask what it could be? It’s good that you’ve had a scan so some things have been ruled out
My husband had weight loss over a few months, out of control blood sugars ( he was a type 2 diabetic and had been controlling through diet - and was only 11 stones before he lost weight so not overweight) - blood sugar over 18 most of the time ( we asked the doctor for a blood sugar monitor at home then eventually got a Freestyle Libre), bowel issues, and some back pain.
Please try not to worry - hopefully it will be something easily treatable and your fears will be allayed.
I’m here if you want to talk further - you’re not on your own.
It is I felt really bad yesterday, yeah I think I will ring them today, I got tested for Hpylori and it was negative so surely my symptoms mean something else, I have been tested for diabetes and my blood sugar levels are fine. Thank you for replying, I will try not to worry too much. Thank you that means a lot.
Can I ask what symptoms you're experiencing, and also your age? My symptoms were gradual involuntary weightloss, fatigue, and a gnawing pain in my upper right stomach area. I had a CT four months prior to my DX, and it too came back clear. My liver tests and blood work were also okay at that time.
I was literally ignoring the worsening pain and fatigue for the four months after the clear scan, but then I became very jaundice. I was admitted to hospital, and from there I had new bloodwork done which showed huge elevations in liver counts and amalase enzyme. An endoscopic procedure revealed a large 5cm tumour in the pancreatic head. Four months earlier though, I had all the symptoms, but strangely the CT scan and bloodwork were all normal. The sudden onset jaundice literally saved my life.
It's extremely unlikely you've got cancer - more specifically, pancreatic cancer. Scans 95% of the time will show even the smallest tumours. My doctor described my tumour as possibly being occluded from detection due to its originally small size - at the time of the CT - and its location. So a clear scan 19 out of 20 times, will mean it's a clear scan, free of any masses. However, if your symptoms are bad and worsening it's still important to press on for answers.
Hi am 31, I have mid back pain, which can sometimes cause stomach pain too, itchy skin, I have lost over stone since May, frequent urination, night sweats and loss appetite. I also had a CT scan which came back clear and my blood tests are currently normal, my amylase was 49 so ave been told that’s fine. My pain can be really bad at times. I hope I don’t end up worse, I have been like this since May.
Hi am 31, I have mid back pain, which can sometimes cause stomach pain too, itchy skin, I have lost over stone since May, frequent urination, night sweats and loss appetite. I also had a CT scan which came back clear and my blood tests are currently normal, my amylase was 49 so ave been told that’s fine. My pain can be really bad at times. I hope I don’t end up worse, I have been like this since May.
I'd suggest your symptoms are quite concerning, and I certainly wouldn't accept a clear CT as being nothing further to worry about. I'm not medically qualified but your symptoms do align with potential issues with your liver, pancreas, or biliary system. The CT is most likely correct, and you are free of suspicious masses. However, that doesn't mean there isn't something medically amiss. Has your doctor ruled out diabetes? Has the doc done a FBC inc. all the liver function tests?
I'd certainly press on and insist more is done. Don't accept the results of the CT as being the end of the matter.
Yeah however they found a small lucent lesion on my spine so I don’t know if my symptoms could be linked to that. Yeah I know that’s why am still worried, yep ave recently been tested for it and that was fine too. Yep I went to A&E because of my pains and they did them then and that was August I think, however am hoping they will repeat them for me.
Yeah the problem is he doesn’t think it’s serious, which I know is a good thing. I have an appointment next week with him, he’s going to examine me, but hopefully he will send me for some bloods. Thank you and I will do x
Hi again so I have been back to the Drs yesterday he examined me and said he’s happy, but still concerned about my weight loss, night sweats and itchy skin so he sent a request to haematology which has been rejected due to my bloods been okay, yet my LDH levels were raised a bit and my neutrophil were on the lower side, however I have had a the blood tests done again today so if they come back abnormal surely they will look into it further.
