Hi james

i was diagnosed with Oesophageal junction cancer back in January. Went for an endoscopy as was having severe burps (like a lion roaring) and coughing a lot of the time and sometimes needed to ‘double swallow’ certain  foods. So it was a massive shock when they told us. I started chemo on 14th Feb - 100% of both etoposide and carboplaton for 6 rounds , last dose was end of June. I couldn’t have an operation as had spread to my liver , so classed as stage 4 - which I hate as people assume if stage 4 you will be dead in days ! I had a CT scan 4 weeks ago so waiting on results of all the chemo. My mid point scan was very promising as the liver Tumour had gone from 8.5 cm to 4cm and the main tumour had shown significant regression, which my oncologist was very pleased with.

one question did you suffer with chemo belly and once your chemo ended . And which NHS trust are you in ?

thanks for your post, needed some positive news about the outcome possible 

I didn't suffer from chemo belly the chemotherapy was very difficult and I was on a trial as well. Stage 4 is a very sad position to be in mainly for your close ones, but never the end, people have beaten stage 4  and I believe you can the way I dealt with my tumor was to believe it wasn't there but I suppose if your swallowing is difficult it would be impossible to do that, I also had lemon ginger and garlic every day and kept as fit as possible I just believed I would beat it and I honestly did believe that I would, I'm not in any NHS trust but my hospital is. I also attend daisy bank which is run by cancer support brilliant place if your close enough thanks James 

I didn't suffer from chemo belly the chemotherapy was very difficult and I was on a trial as well. Stage 4 is a very sad position to be in mainly for your close ones, but never the end, people have beaten stage 4  and I believe you can the way I dealt with my tumor was to believe it wasn't there but I suppose if your swallowing is difficult it would be impossible to do that, I also had lemon ginger and garlic every day and kept as fit as possible I just believed I would beat it and I honestly did believe that I would, I'm not in any NHS trust but my hospital is. I also attend daisy bank which is run by cancer support brilliant place if your close enough thanks James 

Thanks

Hi.

Don't know if you stil use this... but after the ivor lewis did you suffer really bad Nausea from the belly where the stomach used to be?