Oesophagus cancer survivor for over 10 years - happy to help anyone who is on this journey

Hi my name's James I'm a oesophagus cancer survivor of over 10 years, I had chemo before surgery and chemo after, the surgery was the Ivor Lewis operation I've been very lucky I also have osteoporosis and fibromyalgia probably from the intensive chemotherapy, I thought I would come on here to help and answer any questions anyone has about this cancer I just want to give a little back if anyone has any questions i will try answer i can only give you my experience as i am not a doctor thanks 

Parents
  • Hello James, my name is also James and I am trying to support my dad through oesophagus cancer. Unfortunately he did not qualify for surgery due to age and findings of a heart murmur during testing. He completed 6 weeks of radiotherapy and chemo and although initial Pet scans and endoscopy showed that the tumor had gone, today we have had unfortunate news it has returned. We have been told no further treatment to the area is possible due to the previous round of treatment. We are all devastated. 

    we are hopeful that a stent can be inserted in the next few weeks to assist with eating as that has been a real struggle for the past few months with my dad losing alot of weight. Hopefully this enables dad to build up some strength. 

    Your story sounds amazingly positive. I’m not sure why I’m writing the above, a little lost after todays news and come across this thread whilst be unable to sleep! 

  • Hi sorry to reply so late I know every second is valuable, have you thought of getting a second opinion my aunty was 83 and was offered the surgery but refused as she said she had lived long enough and had an amazing life she as sadly passed away now, I hope you are coping as good as can be I've gone through your message a few times now and I'm wandering if your dad wants to go through the surgery and whatever else they want to use to try help your dad, but I can honestly say if I was him I would scream for it, I know a gentleman who comes to our esophagus meetings and that's exactly what he did, and in the end he got the surgery and is quite comfortable now. Esophagus cancer treatment and surgery as come a very long way since I had my operation the Ivor Lewis operation they basically cut you in half when Today's surgery is minimal invasive and the chemotherapy is not as dramatic, as for your dad having a stent fitted this is a horrible thing to have to go through just to get food passed the tumor I would honestly be hell bent on surgery if at all possible I can't see why not if the tumor is less than 4 grade please push as hard as you can atb James 

Reply
  • Hi sorry to reply so late I know every second is valuable, have you thought of getting a second opinion my aunty was 83 and was offered the surgery but refused as she said she had lived long enough and had an amazing life she as sadly passed away now, I hope you are coping as good as can be I've gone through your message a few times now and I'm wandering if your dad wants to go through the surgery and whatever else they want to use to try help your dad, but I can honestly say if I was him I would scream for it, I know a gentleman who comes to our esophagus meetings and that's exactly what he did, and in the end he got the surgery and is quite comfortable now. Esophagus cancer treatment and surgery as come a very long way since I had my operation the Ivor Lewis operation they basically cut you in half when Today's surgery is minimal invasive and the chemotherapy is not as dramatic, as for your dad having a stent fitted this is a horrible thing to have to go through just to get food passed the tumor I would honestly be hell bent on surgery if at all possible I can't see why not if the tumor is less than 4 grade please push as hard as you can atb James 

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