Some advice

Hi i was diagnosed with CMML  at start of year  sometimes i feel as if i am an imposter as i dont get treatment been told its wait and watch obviously was a bit of a shock i have just recently noticed i am very breathless and sweating so badly also quite nauseous i was told by my gp that my platelets were low few weeks ago i go back to hematology soon but would just ask if there was any advice please 

  • Hello Carol_C

    I'm sorry to hear that you've recently been diagnosed with CMML. It's understandable that you may be feeling a whole range of emotions about this news particularly as at the moment you're on the watchful waiting pathway. 

    It's good to hear that you have a haematology appointment planned soon. Do talk to them about your symptoms and any concerns that you have. Hopefully, they will be able to give you some reassurance and help to improve your health. Were you given contact details for a clinical nurse specialist after your diagnosis? If you were then don't be afraid to give them a call about these symptoms and if necessary they may be able to bring your appointment date forward. 

    If it would be helpful to talk things through with one of our nurses you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm. I know they will be happy to listen and offer any advice and support they can. 

    I do hope that things settle and improve for you Carol. Keep in touch and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Thank you   very much for replying back to me