Hi, My partner was diagnosed with GOJ in April after an endoscopy at the end of March. He has had a CT scan, PET scan, staging lap and then 4 rounds of chemo FLOT. He then had another CT scan which showed a good response to the FLOT. He had a staging lap last week and we’re now waiting for results. 
the washings from the first lap were clear and now we’re waiting for results on this second set of washings taken from the last lap. 
the surgeon came out after and said it all looked good and said he could be in for his Gastrectomy in the next week.

(full stomach removal) 

if the washings are clear he can have the operation, if the washings are positive and show that there is a spread microscopicly then he won’t be offered surgery. 
its so so scary. Has this something that was discussed for you guys?? 
my partner isn’t even 40 yet, it’s so hard and we’re not coping well at all :(

hello Daisy 100

really gutted you and your partner and also not forgetting your family are having to go through this dreadful journey together ,( I’d rather be on a journey to a nice hot country with a pool !! )and your story is so very similar with what me and my family have been going through and still some stuff left for us to go through before I ring that bell off it’s hinges!! I’m back this week to start with my mop up chemo sessions another 4 rounds !!! but with a lower dose to start as I’m not as strong as i used to be just yet after my operation but exercising when I can and when feel up to it but taking my time and not pushing to hard as it affects the next days activities but there is light at the end of this sometimes dark tunnel and you must really believe this and stay strong for yourself and your partner , your partner is still a young  enough to smash this nasty thing right out of his body quite a bit younger than I am , when I was in hospital there was a few patients who had Gastrectomys and I really couldn’t believe it they was up and down the ward like mr bean :) back and forward within a week or so and then back home I found this really inspiring while I was waiting for my PMA to kick in , I was in your very similar scary tunnel for a short while ,i found it was a lonely place until I discovered my PMA ( : positive Mental Attitude): it was there all the time I just had to release it ,!!every one’s probably thinking it’s getting boring now but I can assure you it works it really does help in the fight and it continues for us keep it with you at every appointment, when you wake up in a morning or even making a coffee or tea !!and pass it on to your partner as I did cos my partner tuck it really badly and crumbled a quite a lot as they are going through this journey and almost feel helpless but now we go to appointments etc with renewed hope and positivity we still have our moments as iam sure your guys will, it was discussed about maybe not being able to have an operation the floor just disappeared before me but thankfully the FLOT managed to shrink my tumour at my GOJ , unlike your partner I had an Esophaejectomy so part of my stomach and part of my esophogus was removed and made in to a new esophagus I’m post 4 weeks out of hospital but I was in there for 3 months for goodness sake’s I had a lot of great nurses looking after me and I’m doing ok eating stuff I thought I would never do again happy days :) but above all the key to this journey we are all making no matter where this nasty disease likes to make home in our bodies is be positive ,be carm  with your thoughts, and give this disease some attitude,PMA !!!

I’ll sign off for now bed time for me but take care Daisy 100 and sending you and your partner all the very best wishes 

x Desi B 

PMA rules x

Mark

PMA rules x

Mark