Just started FLOT Chemo for GOJ Esophagus cancer, then Ivor Lewis operation to remove stomach , anyone going through this happy to connect

I am 60 Year old Father of 2 and a grandfather of 2 , married for 37 years , and recently retired. Living in Wickford Area Essex. I have previously had no major Health Problems , being fit and active playing golf  and regular fitness sessions at local gym.

In April 2024 following an endoscopy it was identified i may have a malignant tumor at GOJ junction. This was confirmed on 7th May following further endoscopy., various other tests and scans including PET, CT , and laparoscopy Diagnosed T2/3 Stage poss. small spread to nearby lymph nodes ,  fortunately not to other areas of body  and localized.

I have just started a 4 two week cycle of FLOT chemotherapy 24Th June, plan then to have an Ivor Lewis Procedure , to remove all of stomach and then another 4 cycles of Chemo.

Parents
  • Hi, My partner was diagnosed with GOJ in April after an endoscopy at the end of March. He has had a CT scan, PET scan, staging lap and then 4 rounds of chemo FLOT. He then had another CT scan which showed a good response to the FLOT. He had a staging lap last week and we’re now waiting for results. 
    the washings from the first lap were clear and now we’re waiting for results on this second set of washings taken from the last lap. 
    the surgeon came out after and said it all looked good and said he could be in for his Gastrectomy in the next week.

    (full stomach removal) 

    if the washings are clear he can have the operation, if the washings are positive and show that there is a spread microscopicly then he won’t be offered surgery. 
    its so so scary. Has this something that was discussed for you guys?? 
    my partner isn’t even 40 yet, it’s so hard and we’re not coping well at all :(

  • Hello

    I was advised my tumour was T2 poss T3 , localized and poss may have spread to nearby lymph.nodes but no other areas .

    I was told aftet my laproscopy I will after chemo be having full stomach removal.

    At no time have I been told so far will.not be having operation.

    So wondering what stage was the scans showing , and why you were told operation and it's changed after chemo.

    Mark

Reply
  • Hello

    I was advised my tumour was T2 poss T3 , localized and poss may have spread to nearby lymph.nodes but no other areas .

    I was told aftet my laproscopy I will after chemo be having full stomach removal.

    At no time have I been told so far will.not be having operation.

    So wondering what stage was the scans showing , and why you were told operation and it's changed after chemo.

    Mark

Children
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