Hi Tinker7

How’s treatment going?

I’m not going through this myself. My my dad (67) who lives in the Rayleigh area. Has just had this diagnosis. 
we are going to the hospital next week to see the consultant and discuss the PET scan results further. He has been told that he need a laparoscopy to stage the cancer: we know that it’s GOJ and that there is lymph node involvement. 

I just wanted to reach out and let you know that someone else and his family are going through the same scary journey xx 

Hello

Thank you for your kind response 

I'm sorry to hear that your Dad has been diagnosed also with this . It's scary for the family also .

I had a laproscopy , all the surgery etc is done at a hospital , and they were very good .

It sounds like your dad is starting and is just behind a similar journey to me, and under same hospitals.

So if you yourDad or anyone in your family wants to ask anything at anytime please reach out.

My profile gives you more info about me .

Mark

Hi Mark,

how are things your end?

 
dad had consultant appt today, So, it hasn’t spread to any other major organs thankfully. However, the paratracheal lymph node involvement is a worry to them because of the surgery.

They have said that we just need to just take it one step at a time as every result has more than one option.

They want to do a laparoscopy to make sure it hasn’t spread to the peritoneum (will get results same day). Then he can start having FLOT chemo via PICC line. 

Hazel xx 

Hello

If it helps I was told that although not spread to other organs, may be poss it is in nearby lymph node, even after  laproscopy they cannt be sure, which is why as  a precaution we have chemo.

I was told the main reason for laproscooy is to help the surgeons understand more the layout  of the body internally as everyone's diferent .

Following the laproscooy they changed the type  of my  the operation to removing the stomach.

in terms of what to expect time wise , within à month of laproscooy , i had seen oncologist, hsd picc line and ecg , and started chemo.

Just got home from second cycle today.

The good news from your dad's point of view they will operate ,as only 25 to 30 %, of people in UK with this cancer can have the operation.

Let me know if you have any questions anytime 

I try and just take each pahse and one day at a time, and try not to look to far ahead.

Mark

Sorry for typo  errors bit tired from today 

Hi Mark, 

your info has been so helpful, thank you for sharing your journey so far with me. 

yes, we are also trying to take each part at a time otherwise it’s so overwhelming and your mind ends up running away with you. 

I hope the 2nd cycle of chemo is kind to you, rest up and drink plenty ….. Dad told me earlier to  *** off with my nagging. 

Hazel xx 

It's good to stay connected , anytime please message. Happy to share my experience as your dad is so close to my journey, and under same hospitals.

Morning. 

Just wanted to check in and see how you’re feeling? 

Hello

Thank you for your message, on my second cycle,  a few side effects especially stomach cramps .

Had a sacre last week pre cycle 2 blood test showed low white blood cells , so needed injections to boost b4 they could do second cycle.

Mentally just trying to take one day as it's comes, and not think to far ahead .

Tough though , as it seems life on pause, and everyone still out and about enjoying.

Thanks for asking.

Mark 

Hi,

I replied to your message but for some reason I can’t see it?? I was starting to worry about you as you always reply rather quickly.

how are the stomach cramps today? Did they give any medication for it? 

pleased they were able to give you something for the low white blood cells, the last thing you need is an infection. 

The emotional side is so hard, stay strong, each day is a day closer to getting you life back on track. 

thinking of you all 

Hello

Thank you for your response, still getting stomach cramps , which apart from tiredness definitely, my worst symptoms.

I have Buscopan so hopefully that will help.

If I'm honest struggled more mentally last couple of days , feel like life going on around me and I am really just stuck inside like a prison.

Still 3 weeks into the chemo phase , only 5 to go .

Thanks for checking in.

Hello.

How's your dad, has he a date for laproscopy yet .

Hello.

How's your dad, has he a date for laproscopy yet .