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Sandyann - side effects of Folfox

DarnasC
Offline

Hi there I've just started folfox treatment for calangiocarcanoma gall bladder cancer and spread to my liver I had gem-cis last year up until Novmber 2023 It wasn't but no where near as bad a side affects as on this one. Does it get any better has anyone else experienced this. I'm waiting for results of liver biopsy to see if I can start a new trial drug called Tibsovo hopefully I can . Love to all. 

  • Hi DarnasC,

    Welcome to Cancer Chat. I'm sorry to hear you're struggling with the side effects of your treatment. We have some information about folfox on our website, including details about side effects and when to contact your team. If you continue to struggle, do of course discuss this with your doctor.

    It doesn't look like there are too many other discussions on the forum about folfox unfortunately, but it might be worth having a search (using the bar at the top of the page) anyway. My reply here will also give your post a little boost, so a few more people should see it and hopefully you'll get some more replies.

    I hope you're able to get the results you're waiting for soon.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Offline in reply to Moderator Ben

    Thank you for that Ben, yes I've been today to bloods and picc dressed flushed etc ready for tomorrow's treatment and to chat with oncologist so hopefully can help.  Gem - cis last year wasn't as bad but like they say everyone is different.

  • Offline in reply to DarnasC

    Hi everyone hope your all fighting on, just a quick update and a little advise.please don't ignore your temperatures I'm afraid I did thinking ot was yet another side effect Tuesday eve woke up with a temp of 38.5 then again 5am at 40° called aos told me to go straight in my hubby was telling me off to fo not waking him sooner. Got there just in time I collapsed and was unresponsive when got to amu .Turned out I had neutropenic sepsis a result of low immune compromised. Nunh were brilliant I am now home recovering ,Thank goodness love to all Sandy x

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