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New to it all - diagnosed with oesophageal cancer but not suitable for surgery

worlad
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I was diagnosed with oesophageal cancer  on 28th May this year during an endoscopy. 

I have been on the surgical pathway until today, when the surgeon told me I was not suitable for surgery. Is there anyone in a similar situation that I can chat with.

  • Hello Worlad

    I'm sorry to hear that you've recently been diagnosed with oesophageal cancer and that within a few days, you were told that surgery wasn't an option. It's understandable that you may be feeling overwhelmed by this news and concerned about what the future holds. 

    Did the team explain their reason for saying that you weren't suitable for surgery? Have they recommended any other treatment options? 

    I wanted to suggest that you have a look at this thread where lots of folks have shared their story about treatment for oesophageal cancers. It's worth having a look through some of the posts if you feel u to it and maybe replying to some of the members there. I'm also going to tag  in my reply. Dave was diagnosed with oesophageal cancer quite a number of years ago now and wasn't suitable for surgery. You can read his story by clicking on his name but it's likely that he will pop along to say hello at some point as well. 

    If it would help to talk things through with one of our nurses at any point you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm. I know they will be happy to listen and offer any advice, information and support they can. 

    Undoubtedly this is a difficult time for you Worlad. Do keep in touch and let us know how you're doing. We'll do our best to offer any support we can. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Offline

    Hi,

    It’s early days, at a similar point my surgeon (who was as subtle as a brick) handed my case over to an oncologist. 


    To be fair, he did explain that he couldn’t operate because my primary cancer was too close to my aorta, but his abrupt manner upset my wife.
    He arranged a consultation with my oncologist during which we discussed my treatment options and the likely outcome of each option. 


    My only option was chemo or doing nothing, radiotherapy was ruled out for the same reason. That was some time ago, these days you may be offered other options such as hormone therapy. 

    It’s a scary time and everything seems to take too long to arrange but you’re in the system now and, once you’ve agreed your care plan, things will start moving forward.

    Good luck and please don’t hesitate to post one here where there are often a lot of OC patients at different steps on the cancer pathway lurking around.
    Dave

  • Offline in reply to davek

    Thank you for the response, Dave.

    I've been told that the waiting time is 5/6 weeks for an Oncologist appointment, which seems like a long time to be out there wondering what to do. They have all the results.

    I've been called a control freak in the past. haha. 

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