Welcome to the club: diagnosed with prostate cancer

Last Monday I had a phone call confirming my biopsy results. A tumour growing on my prostate that is starting to go into the seminal sack. Well. I’ve been having erectile  problems for years and now a reduced urine flow up and down night and day. I knew the news was not going to be any different.

yesterday I took my first  Bicalutamide Pill prescribed for 28 days. On Tuesday my first hormone therapy injection scheduled. So this is the prescribed treatment for me and many others it seems. 

I’ve not spoken to any other health pro on alternative options. Apparently for my grade3-4 this is best route. 

no one has said a time line for survival but Dr Google says 5-10yrs if your lucky. 

im sure confused about where next. How to approach my future years. Should I be turning to a second opinion fast before getting into hormone therapy. 

What is best. Any thoughts out there?  

Parents
  • Hello Poppathesailorman and a warm welcome to the forum though sorry to hear you have prostate cancer PCa, I have had PCa for two years like you 28 days on bicalutamide tablets once a day quickly followed by hormone therapy injections, the first one  monthly then 3 monthly ones. The Bicalutamide and injections will cut off the cancers food source, testosterone, so will stop growing and shrink and the radiotherapy RT will finish it off, RT is usually done in about 6 months this is to allow the HT to shrink the cancer, so RT is much more effective, This is a good treatment for Gleason 3+4=7, grade 2 PCa and will be done to cure you. You have every right to a second opinion, that is for you to decide. there is one thing that doesn't add up a Gleason score of 3+4=7 usually means the cancer may have escaped the prostate but it has not yet gone anywhere else, as to your future, I know quite a few guys with similar scores to you and i am pretty sure the are all still with us. A word on HT, you probably know about side effects, which if any you get, and how hard they hit you, is any ones guess, but one fatigue nearly everyone gets and is the only one you can prepare for, try to improve your fitness before it starts and it will be a big help to you, if i can help, just ask, best wishes.

    Eddie

Reply
  • Hello Poppathesailorman and a warm welcome to the forum though sorry to hear you have prostate cancer PCa, I have had PCa for two years like you 28 days on bicalutamide tablets once a day quickly followed by hormone therapy injections, the first one  monthly then 3 monthly ones. The Bicalutamide and injections will cut off the cancers food source, testosterone, so will stop growing and shrink and the radiotherapy RT will finish it off, RT is usually done in about 6 months this is to allow the HT to shrink the cancer, so RT is much more effective, This is a good treatment for Gleason 3+4=7, grade 2 PCa and will be done to cure you. You have every right to a second opinion, that is for you to decide. there is one thing that doesn't add up a Gleason score of 3+4=7 usually means the cancer may have escaped the prostate but it has not yet gone anywhere else, as to your future, I know quite a few guys with similar scores to you and i am pretty sure the are all still with us. A word on HT, you probably know about side effects, which if any you get, and how hard they hit you, is any ones guess, but one fatigue nearly everyone gets and is the only one you can prepare for, try to improve your fitness before it starts and it will be a big help to you, if i can help, just ask, best wishes.

    Eddie

Children
  • Hi Eddie

    Thank you for the reassurance. My Gleeson adds up to a 9 so slightly ahead of where you were but I’m going with the HT. Had my CT yesterday and bone scan due on 31st. Im hopeful all is contained. Thank you for the advice on fitness. Noted. I like to sail so I need strength to maintain the activity, so I’ll keep fit. Best wishes.  

  • HI  Poppathesailorman, my apologies I saw 3-4, my mistake. I am not Gleason 7 either, I am Gleason 10 and metastatic, was in seminal vesicles before treatment, which was the same as yours, but because of the mets I had aggressive RT 73gy over 20 sessions April 2023 targeting the whole pelvic area as my cancer was in 9 places. good luck with the scans, 

    Eddie