Hi Lisa and a warm welcome to the forum though sorry you have to be here and that your partner has prostate cancer. Unfortunately cancelled appointments are not uncommon as hospitals are under funded and short staffed, I promise you are not personally being messed around I have had 4 appointments cancelled or changed lately .If you phone the hospital Monday to ask for a new date, tell them  how it's making you all feel, and tell them you can fill in if someone else cancels at short notice. Can i ask you, is your partner already on hormone therapy while he waits for the new trial cancer treatment, and have you told your doctor about your partners weight loss. it is important you.  do. PS i too have aggressive prostate cancer, 2 years now, and if i can help, you only have to ask, take care.

Eddie

Thank you for replying 

my partner went and saw his gp yesterday and he sent an urgent email 

No my partner hasn’t started any hormone treatment 

my partners daughter has put a complaint into pals at the hospital but it could take up to 5 days for a response, I dont know if my partner mentioned the weight loss to his doctor but that’s another thing I found strange he hasn’t been weighed by his gp or at the hospital when this all started ?

Please stay strong yourself can I ask what treatment you are having.

regards 

Lisa x

Hi Lisa, I hope your partner mentioned his weight loss to the doctor it is important he does, Can you tell me what the new cancer trial treatment is called as usually when you get your diagnosis if it's aggressive you start hormone therapy straight away, I would ask for an explanation, It's good you have contacted PALS, have had to use them as well and they were very helpful. Lisa i was diagnosed locally advanced prostate cancer LAPc July 2022 and started hormone therapy HT the same day, Was due to start radiotherapy RT February 2023 but needed an operation, a "TURP", so put back to April 3rd, I had 20 sessions of aggressive "much higher dose" RT targeting the whole pelvic area as my cancer had spread locally, i still have my HT injections every 3 months and will continue to September 2025 as long as they are working. take care

Eddie xx

This is what my partner has they said that it’s contained in the prostate 

it is the new hormone therapy that he is going for and no he hasn’t started any treatment this is what the appointment was for yesterday we presume to let him know when he would be starting the treatment .

Hi Lisa that's great news the cancer is contained, though still puzzled as to why he didn't start HT when he got his biopsy results, hopefully now PALS are involved your appointment should be soon and you can ask them yourself, Lisa HT usually follows a 28 day ADT course so if your consultant tells you HT will start in 2 or 3 weeks that is why. best wishes to you both, take care.

Eddie xx

I will mention about this when we eventually get another appointment thank you so much for replying to me and I’ll give you an update as soon as my partner starts his treatment

My pleasure Lisa, happy to help. look forward to hearing from you soon, take care.

Eddie xx