Neuroendocrine cancer

Diagnosed with Neuroendocrine cancer, with unknown primary  2 years ago. Mets to liver. CT scan recently shown mets in d8 in spine. 
Feeling very down and concerned. 

Parents
  • I was diagnosed with Neuroendocrine Cancer 8 years ago with mets to bone showing in 2020.    My treatment is Lanreotide injections monthly and Zometa every 3 months.   I am well and active have annual CT Pet dotatate scans to monitor growth.  Its possible to live a happy and normal life with this disease so don't let this news get you down.    Keep active and enjoy each day.

Reply
  • I was diagnosed with Neuroendocrine Cancer 8 years ago with mets to bone showing in 2020.    My treatment is Lanreotide injections monthly and Zometa every 3 months.   I am well and active have annual CT Pet dotatate scans to monitor growth.  Its possible to live a happy and normal life with this disease so don't let this news get you down.    Keep active and enjoy each day.

Children
No Data