Neuroendocrine cancer

Diagnosed with Neuroendocrine cancer, with unknown primary  2 years ago. Mets to liver. CT scan recently shown mets in d8 in spine. 
Feeling very down and concerned. 

  • Welcome to Cancer Chat, Liscou.

    I'm sorry to hear about your diagnosis and the recent findings on your CT scan. It's completely understandable to feel down and concerned, especially when faced with challenging news like this.

    Dealing with cancer can be  overwhelming, but it's essential to remember that you're not alone in this. There are many supportive resources available, including this community, where you can connect with others who may have similar experiences.

    Hopefully, others who understand how you're feeling will come along shortly to offer some insight and support. Alternatively, if you feel like asking some questions to our team of nurses, they'd be happy to chat with you Monday - Friday between 9a.m - 5p.m on this freephone 0808 800 4040.

    With best wishes,

    Renata, Cancer Chat Moderator

  • I was diagnosed with Neuroendocrine Cancer 8 years ago with mets to bone showing in 2020.    My treatment is Lanreotide injections monthly and Zometa every 3 months.   I am well and active have annual CT Pet dotatate scans to monitor growth.  Its possible to live a happy and normal life with this disease so don't let this news get you down.    Keep active and enjoy each day.